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Oct 6, 2015 · Visual Snow: Anyone experience this? in Eye Conditions

Hi Grace. I’m the mom who started this post about the visual snow. I wish I had better news for you but there is no cure we have found. We did try topomax and did see some benefit from it but not much. The side effects were probably worse. My daughter is 16 now and what I can say is now she has learned to deal with it and it doesn’t even bother her that much anymore. I think time and maturity helped her brain adapt and allowed her to handle it better. Kelsey, if you read this post, feel free to share my email address with Grace. I’m happy to talk to her about it. Just wasn’t sure I should post my direct email here.

Nov 27, 2014 · Visual Snow: Anyone experience this? in Eye Conditions

Hi. Have you gotten an IEP established for your granddaughter? We have an extensive 504 plan for my daughter due to visual snow. Her plan includes rest time while taking tests, all print outs on colored paper, and extra time. We were also having trouble getting the right diagnosis but we went to her regular pediatrician who gave the right letter because she said while we try to figure out the diagnosis, there is no dispute she can’t see. So she wrote us a letter listing temporary blindness. The schools could not argue against that diagnosis. Hope this helps.

Nov 27, 2014 · Visual Snow: Anyone experience this? in Eye Conditions

Hi. My daughter is now 15 and we know she does have Hashimotos Disease which is an auto immune disorder. Apparently it’s now known that a side by product of hashimotos is the visual snow. She has received some relief from taking topomax. This was prescribed by her neurologist. Hope this helps.

Aug 24, 2012 · Visual Snow: Anyone experience this? in Eye Conditions

Hi, thanks for replying. She’s been tested for any kind of issue with her eye by (from what I understand) the best neuro-opthalmologist in Chicago, among other eye doctors. Apparently it’s been determined that what she has is migraine related, but they’re telling me it’s not an occular migraine because she never has any pain. She only sees visual snow, never resulting in a headache. They call it migraine aura without infarction. We did try a migraine medication and it didn’t seem to work. I just wish someone could help her! Thanks so much for your comment.

Jul 31, 2012 · Visual Snow: Anyone experience this? in Eye Conditions

Thanks for responding. So is it actually a migraine type disorder? I’ve been told this is definitely a problem in her brain and not her eyes.

Jul 31, 2012 · Visual Snow: Anyone experience this? in Eye Conditions

My daughter is only 12 years old. Is there any help for her??

Jul 17, 2012 · Visual Snow: Anyone experience this? in Eye Conditions

Has anyone ever experienced “visual snow”? My daughter suffers from this and sees it 24/7. No doctors seem to be able to help her. We’ve been everywhere in Chicago, and nobody can help her so they left it with “sorry, she’ll have to learn to live with it”. She’s only 12 years old! So I’m trying Mayo now. Just wondering if anyone out there has ever experienced this; apparently it’s rather rare.