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Posts (3)

May 27, 2015 · Difficulty initiating swallow in Eye, Ear, Nose & Throat

Hi-Haven’t been on this blog for awhile but your comments on your brother’s condition popped up on my Email. I’m on oral cancer #3 and declined further radiation 1/2014 at Mayo because more damage wasn’t what I needed. Finally lost my swallow completely after many lung infections/pneumonia from ingested food. and now feed by G-tube. I must have missed something but how did your brother have a “spot on his lung”, and the radiation treatment for it “burned his throat”? I know radiation has a field of effect, but that’s quite a stretch. The only thing I can offer is that i have been tube fed for 18 months now, and the only problem is I keep GAINING weight. If your brother has access to a good nutritionist, perhaps they could find a liquid supplement that he could keep down. When I declined further radiation, they gave me 3-5 months and I’m still here, so you and your Bro hang in there.

Nov 8, 2013 · Difficulty initiating swallow in Eye, Ear, Nose & Throat

My swallowing issues are to the point where I will probably have to have a stomach feeding tube to survive. Oral cancer of the tongue twice (1998&2010), loss of my right mandible, numerous surgeries, and radiation treatments have left me with a painful neck and throat that feels like petrified wood, a larynx/epiglottis that won’t block my airway when I swallow, and chronic pneumonia from food/bacteria entering my lungs. I go to Mayo Jax for ENT cancer follow-ups, pulmonary etc., and receive xcellent care. No knowing what causes your swallowing problems, I can’t advise you, but I’m sure Mayo can. I have had 2 swallow studies done there where you swallow barium liquid and other food consistencies, and they watch your swallow mechanisms on ultrasound then render an evaluation. You may already be familiar with that. Mayo always seems up on the latest techniques and procedures so, if you have access, I highly recommend them. Good luck!

Oct 23, 2013 · Base of tongue SCC in Head & Neck Cancer

71 yr old male. Base of tongue SCC rightside (May 1998)-Radiation twice daily for 33 days followed by Rt. side neck dissection. Lost right mandible (ORN) repaired by cadaver bone (Jan 2001) that failed (Jun 2001), was removed, and face held together by external brace. Fibular flap w/ titanium jaw brace(Nov 2001) that has held to date. Secondary bout with SCC tumor in forward tongue (Jun 2010) excized by Laser. Removal of lymph node under tongue followed. Retained my intubation trach to solve sleep apnea. Surgeries/radiation left me with stiffness/tightness/pain in right shoulder up through right jaw that has migrated across my neck over the years and has left me unable to eat/swallow correctly, I am subject to chronic Pneumonia due to food aspiration into my airway/lungs.
Currently, front of my neck around laranyx is like petrified wood and passageway is so tight can’t hardly swallow. Swallow study recommendation: Stomach tube to minimize recurrence of Pneumonia and facilitate nourishment. My biggest problem is the stiffness/tightness/pain in my neck/throat has increased to where it has become a distraction. It is worse in late afternoon/frontal passages/and riding in the car. Naproxsyn 500’s (crushed) offer some relief, but hard on stomach.
I thought maybe someone else suffered these late side effects, and could provide some insight on easing the symtoms. Acupuncture? Deep Massage? I’ll try anything!