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Posts (4)

May 22, 2012 · mixed connective tissue disease in Bones, Joints & Muscles

I eliminated all enriched flours from my diet (follow the Dr Oz recommended first five ingredient list) I eat only 100% whole grains now. It is rough to find the things I love to meet the requirements and I have taken to baking many things from scratch. For me… Sugars and those “white” or “enriched” foods caused inflamation! I am still struggling with my rash… Mainly because it’s spring and im a gardener! Love being outside! But, I do most of the shade gardens while my husband handles the veggies in the sun. I have found that ginger works for my pain. I add ginger root to my smoothies in the morning, my tea in the afternoon, and generally use it in cooking as much as possible. The most recent transformation I have made is to reduce the amount of animal protein I consume. I am getting most of my protein from soy, nuts, veggies, and fish. My body seems to be able to break it down and use it faster and better so I have more energy (or so my research tells me). Whatever the reason, I feel stronger! In general, I stay away from processed foods and opt for fresh and raw whenever I can… I make my own dressings, baked goods, and grow my own herbs… My main symptom is inflamation of my joints. I researched foods that cause inflamation and cut them… Then found that many food reduce inflamation, such as cherries and omega-3 rich foods. Broccoli is my favorite friend. Oh! And. Cow’s milk was another thing that I replaced. I drink soy, almond, or coconut milk now… The cow’s milk is an animal protein…. As for the rash… Water, water, and much more water… And reduce sun exposure and stress! The more I excersise (yoga and water classes) and eat right, the better my rash is (if I stay out of the sun)… Goodluck and let me know what you find that works!

May 21, 2012 · mixed connective tissue disease in Bones, Joints & Muscles

I’ve struggled with this for 14 years… So many tests, so many wrong answers from doctors… Finally a clear diagnosis two years ago. (I always knew it was lupus, but rhummy wouldn’t diagnose because no rash on face-crazy!) and I couldn’t even begin to list the different meds I’ve taken…. But I do know the damage most of them have done to my body! For every pill the rhummy put me on, family dr had to give me two more to counter the side effects! I am now following an all natural plan which includes strict diet changes and zero impact workouts (in water) and herbs I grow at home that provide pain relief (legal ones…hahaha). I’m still struggling some days. I still have pain and stiffness each morning. But, I’m not sick from the meds, I’ve lost 50lbs and My head is clear! I’m also not as fatigued without all the drugs! Research natural alternatives… Then insist that your doctor help you through it. This is not a “vitamin-health drink” diet… Just eliminating those foods that hurt us and adding better foods to help! Goodluck!

May 21, 2012 · connective tissue disease in Diabetes/Endocrine System

If its within your budget… Hot tub! If it’s not… Find a way to make it happen. I’ve fought this for 14 years and 15-20 min each day after work relieves the stiffness and pain enough for me to enjoy my evening (MOST DAYS) also, talk to your doctor about diet changes… I have eliminated all enriched (white) flour from my diet. Only eat 100% whole grains… And ginger is a natural pain reliever… Please talk to Dr of course about the ginger and such. But there are natural ways to combat this disease.

May 21, 2012 · MCTD (Mixed Connective Tissue Disease) in Autoimmune Diseases

I am 41 and have been fighting this for over 14 years. It started with muscle weakness and joint pain. I couldn’t lift up my 3 year old son and Ifound that I couldn’t run with him. Years of doctors, specialists, tests, misdiagnosis, medications, side effects, more pills to counter the side effects and damage of the orignal medication….. Just to cycle around and discover the medication wasn’t working… More tests… Blah blah. So, after all of this I am off my meds! Don’t get me wrong, this is tough. I have pain and stiffness every day. But, I am not sleeping through my life (the meds made me so groggy) I am not mentally flatlined (I was taking. Cymbalta, but I wasn’t depressed!) I am trying to manage my symptoms with diet and excersise. ZERO impact activity (water classes). And tons of the RIGHT foods and herbs. Progress is happening. I still see my family Dr for routine health checks… All is fine! I’ve lost 40 lbs (50 more to go) and I’m not smoking! Things I tried to do for years but never was able to do iron the meds… I feel like I have my life back!