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Posts (4)

Jun 4, 2012 · Chronic Myeloid Leukemia in Blood Cancers & Disorders

Midnight is real normal for me .I worked 2nd shift at AT&T for years and it’s hard to break the habit.i have my drs appt tomorrow and all of my blood work .My GP thinks the reason I’m feeling so rotten and muscles aching is because after you’re on a chemo drug very long you become toxic ,so we’ll see what my oncologist thinks.i just don’t know anyone else on this drug ,so I don’t have anyone to compare it with.I have 3 kids ,2 girls and a boy 5 grandkids and 41/2 grt grand kids.Youngest girl is in NY and the other about 4 hrs away.My son lives about an hour away .I have a lot of good friends and neighbors that have really helped me out a lot.
It’s been really dreary here today and a little rain that was much needed.Hope you stay healthy ,that’s more important than wealth ,Sandy

Jun 1, 2012 · Chronic Myeloid Leukemia in Blood Cancers & Disorders

Linda ,i’m pretty active in our church .When I lost husband in Sept of 2010 ,I was totally lost .We had been married for 52 1/2 yrs ,i didn’t really know how to function without him.But with the help of my Christian friends and family ,i’m learning new skills ,i never thought I could do.
I have to go for more blood tests tomorrow to have my muscle enzymes checked ,if i heard her correctly and i seem to be running anemic again and low calcium.
i do pretty decent most days just have to pace myself and not over do.
The weather affects me horribly ,i feel like my life is totally controlled by the barometer ,and it’s raing her today.
Planning a trip to Amish country saturday with friends .Glad you’re doing well ,Sandy

May 27, 2012 · Chronic Myeloid Leukemia in Blood Cancers & Disorders

I messed up ,I only take 400 mgs of gleevec ,i don’t know what I was thinking.
I take half in the am and half in the pm.
THey won’t say I’m in remission just that it’ keeping me stable.Since I’m the only CML patient she has ,I’m thinking I should drive to Indy where they treat more cases ,so i’ll have others to compare myself with.I’ve fought the ra and fibromyalgia since 87 ,so all of it together keeps me pretty drained.I just turned 70 and took a trip to israel ,so I’m blessed in so many ways ,i don’t need to be whining .It would feel good though just to have a few days pain free and have some energy.i’m glad you’re doing well.Sandy

May 21, 2012 · Chronic Myeloid Leukemia in Blood Cancers & Disorders

I’ve had CML since 2007 ,taking 800mgs of gleevec daily ,also dealing with RA and fibromyalgia.I believe i contracted CML from taking enbrel injections for 5 yrs for the RA.I deal a lot with severe muscle cramps ,but lately they’re getting worse ,hitting me in the ribs and cutting off my wind.DO you have any trouble like this?