Going to Mayo and getting the tilt table test was the best thing we did. at least now I am not hearing “it is all in his head”. we still struggle with POTS and the sadness of the disease.
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Hello I am also named Kim. My son has POTS and we are still struggling trying to manage the symptoms or develop somewhat of a new routine. he is in bed the majority of the time. I am seeing the Dr. today to get a referal to the Pain Program. I do keep hearing how much it helps! Beyond increased salt, fluid and excercise… any other ideas?