he is on levadopa., exelon, namenda , serequel and wellburtrin
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My husband dones’t have the hallunications or fallsl he too was very athletic and did play college football and had concussions. Like I said he does have ” some” of the symptons but not the more common ones so I think that is why the Dr’s don’t really know what is going on but for some reason one likes to label it as the DLB with “parkonsonisms” … so I am stil in seach of answers. He can still dress himself and walk ( although his gait is off ) but he is totally a different person that he was 2 years ago. Plus he has the masked looked or blank look in his face all the time…One day at a time is my motto for now… Good luck and God bless!
the reason we started going to the dr’s in the first place was breathing issues, personality changes, lack of empathy and extreme fatigue. Then I began noticing small details with his memory, rigitity in his torso and neck and shuffling gait. He doens’t fall and hasnt and has no tremors. Just a totally different person that what he was and now he hums or make noises all the time ( even at sleep) and he isn’t aware of it . HIs memory is really bad; long term is fine, short term is awful plus now he has developed obsession w/ lottery tickets too. Here is a guy who never spent money and now I have to hide money and credit cards cause it is like he lost his filter in making good decisilons. He is on levadopa which has helped the rigidity in his torso and is on exelon and namenda but there isn’t any difference at all. His sleep patterns are bad too- even though he is on serequel to help him sleep he is up a few times a night and is usually up at 500 to start his day. It is just really frustrating cause he doesnt fit into any one category and doens’t have a lot of the main symptoms that he should have ( like hallunications for the DLB) but no dr can agree so I am looking to help . Plus his breathing still sucks and no one can figure out why… his pulmpnary work outs came out clean….So here I am still searching for answers…
I am curious to know your symptoms …all of them. My husband is suspected of maybe having this but no one is sure yet. He has been suspected of either having this, FTLD or DLB….but he doens’t have any falls although his gate is off and his cognitive abilities are awful. I just want to compare symptons… Good luck and god bless for I have read up on this PSP and I know it sucks! I will keep you in my prayers
Thank you for the insigt- I too am readying the 36 hour day…but again I am not convinced the dr’s are right. I hate to be so skeptical but ….so we shall see. Going to another specialist in Pittsburgh on Thursday so I am anxious to see what he t hinkgs
hello- my husband is suspected of maybe having one or more of these diseases but has yet to really be diagnosed. He has symptons of each but not all …but some of the more promient symptons ( like hallucinations withe the DLB) he doesnt have and he doens’t have the falls; never has…but yes his gate his off and his biggest problem is cognitive….and now he is humming all the time, even at night and is beginning to drool. Also his breathing sucks even though he has had 2 full pulmonary work up and they cant find anything wrong. Here is a guy who ran 4-6 miles every other day and was in great shape. Now he is always tired, has personality changes, forgets just about everything short term, has gained obsession with lottery tickets ( and might I mention never was a spender before this). I am looking to talk with people who have these diseases so compare their symptoms with his. Any insight would be wonderful,
Join a support group- take time for yourself, see a therapist and remember that the person your caring for isnt themself! I do know how difficult it is for I too am a caregiver to my husband of 22 years..who up until a year and a half ago was a healthy, vibrant, awesome indivdiual. Now half the time I have no idea who is living in my house with me. He is so totally diffierent and some of the things he does just drives me crazy…but throufh support from friends, family and groups, plus me having my own thereapist ( and meds for depression) has helped a lot. I never thought I would have to seek outside help for I though I could handle it but I was wrong. It is a lot to deal with ( espcailly if children are in the picture). Most importantly, take care of yourself and realize that the person who is doing the things they are cant help it!