After 11 years my father passed away February 27, 2014. After his very last visit to Mayo (the one mentioned above) he was essentially told there was nothing more that could medically be done to prevent the inevitable. Mayo inserted a permanent, enclosed shunt that allowed excess cranial fluid to drain into his abdomen and was reabsorbed by the body. The tumor itself, although shunk, was never going to be gone. However, due to his 3 Gama Knife procedures his pituitary gland was completely disseminated and he not longer had function of his endocrine or immune system.
After a year and a half back home you progressively and swiftly towards the end went down hill. He went from walking and talking to bed ridden in 16 months. Essentially the brain tumor itself split and started growing towards his brain stem and cause his system to systematically shutdown.
My father passed away at home ultimately from a coronary episode in conjunction with plural drowning from fluid build up.
My thoughts and prayers are with you and your family. Please take this time to enjoy the moments you have now. The end may come sonner that anyone thinks. PEACE.