I’m glad that you are listed. I have started the process for evaluation for transplant (TX). From what I understand, there are very few people who ever “need” a transplant for PLD, since “livers never fail.” Four months ago, I went in for day surgery, but didn’t leave for six days due to complications (including severe liquid retention.) The water retention began to fill the small cysts in my liver. I didn’t even know I had cyst in my liver. I have yet to “eat” a meal since the surgery. It was finally discovered just a few weeks ago that the reason I couldn’t eat was because my liver had crushed my stomach. All along the doctors thought my lack of desire for food was due to medication. Do you mind if I ask, where you are seeking treatment? Are you at Mayo? The local transplant center here don’t seem to have seen this before, so I’m trying to decide if I need a second opinion. Here is’s all about “end-stage liver disease.” Since my issue isn’t end-stage, they had a difficult time even deciding if this was the best option. If this is the right decision, then is TX the right location?