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Posts (7)

Mar 26, 2012 · Sick for three months - pericarditis? Infectious disease? in Heart & Blood Health

I think most university hospitals have a “find a doctor” locator on their website. I know MDAnderson does(I had a big surgery there luckily NOT cancer). They will probably want medical records, most do. Check their website before you start emailing indivually although that might work. Please keep us updated as to your progress!

Mar 25, 2012 · Sick for three months - pericarditis? Infectious disease? in Heart & Blood Health

Mice and their fleas carry leptospirosis–were you checked for that? Also, swimming in a lake in Africa could have exposed you to any number of things. I would seek out an infectious disease doctor–you have been to places that might put you at risk for things local doctors have never seen. I see you WERE tested for parasites but I would seek out diagnosis in a major medical center if you could.

Mar 25, 2012 · Frustrated and still no diagnosis in Cancer

I forgot to ask if you have been tested for Lyme disease by a Lyme literate lab? Many people post on the epstein barr forums about this and all insist that the lab used is very important. another thing they mention is “babesia”, I hope I am spelling that correctly(maybe barbesia)which is also caused by a tick bite I think.

Mar 25, 2012 · Frustrated and still no diagnosis in Cancer

Good luck! I hope you find the cause–it will give you peace of mind. At least you know what you are fighting. I think I would go to Mayo unless your neuro finds something definitive. I hope you let us know what happens.

Mar 20, 2012 · Lyme disease in Brain & Nervous System

I am not a doctor but would say no to this question. I have never heard the two related.

Mar 20, 2012 · want to know by symptoms what may be the disease? in Just Want to Talk

How long have the symptoms been going on? It could be strep throat, mono, flu or many different things. since there is fever I would hope your friend could go to a doctor.

Mar 20, 2012 · Frustrated and still no diagnosis in Cancer

You are me. I have had the same symptoms, extensive labs done, many trips to the doctor, finally ended up at a psych for extreme anxiety/depression. finally was tested for Epstein Barr Virus. There is a site for that if you are interested: chronic Epstein Barr Foundation forum. It is the virus that causes mono which I never had. 95% of us have it in our bodies but stress can allow activate it. even though there is no real cure, it was almost a relief to me to find the cause of my problems–now the fatigue is my worst symptom along with extremity weakness. I really thought I was a total hypochondriac and had the feeling my doctor was humoring me for awhile. Good luck. I hope you find an answer–it will certainly rule your life until you do.