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So I went to the rhuematologist today for a follow up. After witnessing some of my newer symptoms, such as electric shocks throughout the body, she wants me to come back to the mayo clinic and to call my local neurologist for a lp. Of course, she didn’t offer to pay for either rofl.
I know this is a touchy subject for many, but I am still looking for answers. My trip to Jacksonville helped with some, but not all. I am suffering from a mystery illness and it seems to be related to my father’s exposure to Agent Orange. Me and my sister both have the same symptoms, except she is more advanced. My niece is starting to show the symptoms. In my search online, I have found many other children of Vietnam Vets going through this. I guess I’m just wondering if there are any here, and if so, do you have a diagnosis yet? I have some such as fibromyalgia and connective tissue disease, but it doesn’t cover all of the symptoms. The symptoms are very ms like. I am 35 years old and some days have to use a walker. I fall. I lose feeling in limbs. I can not even hold a job right now. I have met many other children who have had a wide range of illnesses and birth defects. I know a lot of us are suffering from mental illness including bipolar. I’m bipolar myself. But I have that answer. I want the answers for the pain and weakness and fatigue. I plan on revisiting the mayo clinic after I get better insurance since new symptoms have come on since my last visit. I know they did everything they could. I know my local doctors are. I’m just hoping to get more information to take to both there and my local doctors of people with similar symptoms and had a hard time getting diagnosed. My own research on dioxin is showing that these are very common symptoms of it. So just wondering who else is in the same boat.
I went to the Jacksonville location for a very similar situation. They did help unravel some of the puzzle, even though not all. I do feel they did all that could be done. I am in the same boat. My local doctor believes it’s an unknown/unnamed autoimmune illness caused by my father’s exposure to agent orange. While I did not get all of the answers while I was there, I did get a great treatment plan which my local doctors have been following to at least get some of my life back. The fight isn’t over, and now that I have new symptoms, I’m considering going back when I get back on good insurance. Unfortunately, some illnesses just take time to show their ugly head. I honestly did not feel that I should have been at a different campus the entire time I was there. I chose to go to the Jacksonville location as I live in the Tampa Bay area and it’s pretty close. My doctors here kept saying go there and I listened. I’m learning to accept that I may only be able to get a treatment plan without a name. It’s tough. I wish your wife the best of luck no matter which campus she goes through. Searching for answers is truly the worst.