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Posts (8)

Jul 25, 2015 · Gastroparesis with severe symptoms! in Digestive Health

My doctor wants to inject botox in my stomach. Any thoughts on that?

Dec 16, 2013 · Gastroparesis* in Digestive Health

I didn’t get a pacemaker. They did a fundoplication (wrapped the top part of my stomach around the esophagus to tighten things). In the process he cut my vagus nerve, which caused the gastroparesis. I thought I was

Dec 16, 2013 · Gastroparesis* in Digestive Health

The anti reflux surgery is what caused my gastroparesis.

Mar 6, 2012 · Gastroparesis with severe symptoms! in Digestive Health

I have taken zofran for nausea and it seems to actually make me worse and vomit. I have IBS and when I have an attack I disolve a Symax FasTabs (levsin with a unique distribution to get into system fast) tablet under my tongue. The generic does not disolve. You need the brand. NuLev was best but they don’t make it anymore. I also have gastroparesis (quite significant but not with all your bad symptoms). Unfortunately for me it does not make me lose weight even though I have little appetite.
It sounds like you have much more than IBS going on and don’t let them push it off as psychiatric! I wish you could get worked up at Mayo clinic. I’m sure with the way they do work ups there they would figure this out.

Mar 6, 2012 · Burning Mouth Syndrome in Just Want to Talk

An oral dermatologist treats burning mouth syndrome. They are rare though. I saw one at Mayo Clinic and then they referred me to one in my area in Michigan that trained at Mayo.

Mar 6, 2012 · autoimmune diagnosing problem in Autoimmune Diseases

P.S. Fibromyalgia does NOT give a positvie ANA or RA factor or positive Lupus test. It can make the sed rate and CRP high but that goes with any autoimmune disease and is non specific.

Mar 6, 2012 · autoimmune diagnosing problem in Autoimmune Diseases

Once positive is ample evidence of the disease. Keep bugging the doctors to take you seriously. What happens sometimes is that you have more than one autoimmune disease (and many go hand in hand) and the blood tests can come up differently at any given time.

Mar 6, 2012 · autoimmune diagnosing problem in Autoimmune Diseases

It is not always easy to diagnose Lupus. Some doctors rely too heavily on blood tests and ignore the obvious symptoms. In the end (after years of symptoms) my new doctor said there was “ample evidence” for Lupus (SLE) and started treating me. Some doctors call it “Lupus like disease”. Persevere. I wish you had the opportunity to visit the Mayo Clinic. However, there ought to be someone in your area who can handle this. Just do not give up.