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Posts (2)

Feb 27, 2012 · Hairy Cell Leukemia - Mentally Challenged Son in Blood Cancers & Disorders

Thanks for sharing your story. I hope all goes well for you and your son. I’ll keep you in my thoughts and prayers.

Feb 26, 2012 · Hairy Cell Leukemia - Mentally Challenged Son in Blood Cancers & Disorders

We faced a very similar situation with our dearly beloved son who had Down syndrome and was diagnosed with ALL leukemia. We chose hospice care. It was a family decision. We were fortunate to have input from friends in the medical field as to the side-effects of treatment and the prognosis for quality of life. We talked with a lot of people including some who had similar situations and chose a different path. Our son died 7 months ago. I miss him every day, but am very at peace with our decision. His last two months of life were filled with love. He died peacefully at home.