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Jun 17, 2012 · Frontal Lobe Dementia in Brain & Nervous System

My husband was going to the seniors day program for 3 weeks. I was told that he could no longer attend because his behaviour was so disruptive. Everything he says has a sexual innuendo and the other attendees found it very upsetting. Especially the older ladies. He was also harrasing the caregivers. I am finally getting care in the home now for 14 hours a week. That just started 3 weeks ago. That is working out very well. He was dead set against having someone come in but they girl they send is a gift from God. They hit it off immediately. I am so thankful.

I have noticed another decline in him in the last week or so. The caseworker noticed it too. He also has COPD and has a lot of difficulty breathing. I was told at one of the courses I took at the hospital that any time you notice a change that he should go to the doctor and have his urine checked. Sometimes an infection can cause changes. I will be taking him this week.

I attend the Alzheimer meeting all the time. They are extremely helpful.

Best wishes Georgie

Apr 5, 2012 · Frontal Lobe Dementia in Brain & Nervous System

My husband says what ever is on his mind. He has no inhibitions. When we were out for dinner with friends at a very fancy restaurant the lady came to our table to see if we were pleased with our food and the service. She was wearing a beautiful pant suit and my husband told her to get her hands out of her pockets because people would think she was playing with herself. We were mortified. He told a lady recently that she had ugly legs. My friends daughter was very excited because she had just found out she was pregnant – Ron said to her that he knew what she had been doing to get that way”. It sure spoiled the moment for her. That is the kind of thing he does. Every time we are out, I am on edge because you never know what he is going to say. At home he is very irritable and stubborn. He pouts like a little kid. He also has a very bad tremor in his hands and lips and chokes quite frequently. People with frontal tempotal dementia can have a lot of difficulty with swallowing and eventually they can lose the ability to swallow and speak.

His short term memory is not as good as it was but with FTD it is more a behaviour problem than a memory problem. I took him to 2 neurologists and then took him to Baycrest in Toronto. It is one of the best Brain Hospitals in Canada. We were there for 3 nights and 4 days of testing. That is when the diagnosis was confirmed. If you have concerns, get a 2nd opinion. I had to because he wouldn’t listen to the first 2 doctors. Hope this is helpful. If you have any other questions I would be happy to answer. I go to a support group once a month. It is a godsend for me. They give a lot of insight in how to deal with some of the problems because they have experienced the same thing. I have a book called “The 36 Hour Day”. It is a family guide to caring for persons with alzheimers disease and related dementias. It is writtend by Nancy L. Mace and Peter V Rabins. This book is endorsed by many specialists in the brain disorder specialties.

Feb 7, 2012 · Frontal Lobe Dementia in Brain & Nervous System

Thank you very much for you response. I am still trying to get him to agree to having someone come in the home. I will be seeing his doctor tomorrow and will ask her to suggest it to him too. I will keep trying.

Feb 1, 2012 · Frontal Lobe Dementia in Brain & Nervous System

He has seen many doctors. I have talked to Community Care Access and they have him on the list for long term care but since he can still dress himself and shower on his own and make a sandwich he is not considred for in home help yet. I signed him up for the VON day program but they said his behaviour was very inappropriate and they had too many complaints from the elderly ladies so he can’t go any more. I can pay to have VON come in the home but he won’t let them. I sometimes feel like a prisoner in my own home. I am afraid to leave him alone because of the choaking and swollowing difficulties.

Jan 30, 2012 · Frontal Lobe Dementia in Brain & Nervous System

My husband has been diagnosed with frontal temporal dementia. I have trouble dealing with his behaviour when we are out in public. His behaviour at home is very trying. He is very beligerant and aggressive. I need help at home but he won’t allow anyone to come in. He is having a lot of difficulty with swallowing and is choking quite frequently.