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Posts (2)

Jan 18, 2012 · polycythemia vera in Blood Cancers & Disorders

diagnosed three years ago but can see from blood work that I had it a couple years before. Have been with same cancer center in GF ND from start and recently to Mayo to try have surgery. Need to get platelets under 400 and I am around 800-950

Jan 18, 2012 · polycythemia vera in Blood Cancers & Disorders

I have had poly V for three to five years. Phlebotomies keep hematocrit in order but recently needed surgery for hernia and platelet count is too high. I can not take hyroxyurea (when I did for 30 days w/o side effects really worked well but then I got flu like conditions and very hight temps and had to stop using) We have tried Busuflan (no luck) and now am going to take anagrelide to see if we can control high platelet count. Everything I am told about hydroxyurea is it works great and the Doctors I have talked with think it is a good drug. Wish I could take it.