Badges (1)

About

Member has chosen to not make this information public.

Pages

Member not yet following any Pages.

Posts (5)

Jan 14, 2012 · Post brain surgery nerve pain in Brain Tumor

I think he may be one of only a few doctors in the United States that does it…not sure about the Mayo clinic. We are blessed to be within a few hours of Hopkins and a little over an hour from Georgetown.

Jan 14, 2012 · Post brain surgery nerve pain in Brain Tumor

you should also check out peripheral nerve extraction surgery at georgetown university hospital with dr. Ducic. he may be able to extract the nerve in an out patient surgery.

Jan 14, 2012 · Chronic head pain in Brain & Nervous System

I had nerve extraction surgery in August at Georgetown University Hospital. i developed occipital neuralgia after brain surgery in 2010. I exhausted all treatments like meds, nerve blocks, ablations…then I saw a doctor on tv who was doing this new procedure where he either goes in and makes space around the nerve to alleviate pain or he extracts the nerve. Because my greater and two lesser occipital nerves were severed during surgery, I was a candidate for the extraction. It was outpatient surgery. As supraorbital said, it made my pain livable on most days. I have to take each day hour by hour with different degrees of pain, but reduced a lot from before the extraction. The doctor’s name is Dr. Ducic. if you want to know any more about it, I’d be happy to share.

Jan 14, 2012 · acoustic neuroma/occipital neuroma in Brain & Nervous System

I am seeking contact with patients who had an acoustic neuroma removed and have suffer from occipital neuralgia and migraines ever since. I would like to share treatment ideas and commiserate.

Jan 14, 2012 · Acoustic Neuroma in Brain & Nervous System

Hi Wendy,
I had a .8 neuroma removed in May of 2010. I am 40 and the doctors thought removing it would be the best thing because I have too many years of life left for regrowth. They also said that they don’t have research about what effect the gamma knife is going to have 20-30 years down the road, and one concern is that cancer cells may grow. So from what I understand the gamma knife is a great option for older patients. This was all at Johns Hopkins.
All that being said, I think I would recommend you try any procedure before surgery. I have had some degree of a headache every minute of every day since my surgery. It has affected every area of my life. I ended up with occipital neuralgia that triggers migraines. I have pretty much exhausted every form of treatment, and have just had to adapt my life to living in some degree of constant head and neck pain. Obviously, not every patient develops a neuroma, but I wish I had paid more attention when the doctors said that ____% of patients develop headaches after surgery. I never imagined they meant 24-7.