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Posts (3)

May 11, 2012 · Need help with Mystery Illness--Possible Sjogren's Syndrome?? in Autoimmune Diseases

Hi DerbyFever. I just returned to Mayo Online, and missed your post in January. Glad to hear that you are better, and I hope you are staying well. I am not aware of any relapses in my brother’s mental health since he began his regimen of alternative vitamins. He continues to do well. Thanks for asking, and again I hope you are doing well, and thanks for sharing your journey on this forum.

May 10, 2012 · Chronic bilateral femur, shin and sole of foot pain in Just Want to Talk

I may have some kind of spinal stenosis. Just got back MRI results which appear to show ‘some compromise of the neural foramina at L4-L5’. I think this is another way of describing spinal stenosis. The physician’s good news is that he said there was no indication for going into surgery of any kind at this point.

I am being served by a physical therapist who is using some mild electrical impulses applied to my L4/L5 location for about 15 to 20 minutes. Pain management has been better as a result. I have been offered hydrocodone-acetominphin for pain control (a narcotic ) and I would prefer not to use it. I didn’t need it last night for the first time in three nights. I had had my first electrical impulse treatment earlier in the day.

It’s a wierd conundrum. Sometimes a cane helps me with pain, sometimes no cane is better. I can’t figure it out.

Hope this might be of help. I will track this conversation.

Jan 8, 2012 · Need help with Mystery Illness--Possible Sjogren's Syndrome?? in Autoimmune Diseases

My brother, age 65, experienced an almost identical mystery illness three years ago. He strongly believes that his similar and acute mystery illness (extreme emotional and cognitive dysfunction, being-in-a-cloud, etc) was caused by his reaction to taking Levaquin. He has done some research, and his lay theory is that his liver could not metabolize the Levaquin properly. His system was essentially overwhelmed. Most doctors prescribe this anti-biotic because it in fact does help people with infectious diseases.

However there is a segment of the population which is intolerant of this medication… Unfortunately genetic testing protocols are not available to help assist doctors select the appropriate antibiotic for the individual patient. The routine prescription protocol seems to be to prescribe various anti-biotics in increasing order of power: amoxycilin, Doxicyclin, and then maybe Levaquin. I figure that my genetics are similar to my brother’s, and I have told my doctor to please avoid this fluroquinoline class of anti-biotics when I need an anti-biotic. Maybe only in a case of life or death will I allow Levaquin or similar to be used.

My brother is now better. He attributes his recovery to a regimen of alternative vitamin therapies. I Hope this helps.