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Thu, Jan 16 10:03pm · What to do when in SVT? in Heart & Blood Health

Hello Ashby, I can certainly relate to how you feel. I have had SVT since I was a little girl- And I clocked in between 210 and 240. I reached a point, about 7 years ago when meds were not working. A PVA (pulmonary vein ablation) solved the problem for me. I understand your feelings about flying , or being in a situation where an emergency room visit isn't viable. I realized, once I started feeling limited in my choices because of my heart I had to find a more permanent solution. I would like to say that I avoided any suggestions regarding a pacemaker, mainly because you would have to be pacemaker dependent, with a sinus node ablation. I think that there are other avenues and choices before making that one. I had SVT since I was a young child, (am now 68) and in my 50's I developed atrial fibrillation and atrial flutter. I did have 4 failed attempts at ablations but it was the 5th, more extensive, PVA that was successful. So far, so good. If you are feeling that your symptoms are interfering with your life choices I would think its time to find a better solution. I wish you luck and an appointment with a good EP!!

Jul 9, 2018 · Pacemaker recipients. in Heart Rhythm Conditions

Hello Colleen, I used to contribute on the heart rhythm discussions, particularly about ablations. I had 4 failed ablate thatons and a successful PVA about 5 years ago. I am actually inquiring about a group for a friend of mine. He has recently (6 weeks ago) had a pacemaker inserted for an AV block. I thought that these discussion groups would be good for him but I see that most of the posts are 2,3 or 4 years old. Is there an active group now that discusses pacemaker concerns for AV blockage? Thanks, Martishka

Apr 2, 2018 · Heart Rhythm Conditions – Welcome to the group in Heart Rhythm Conditions

Hi ppartrid, I just posted a response above to Nancy. In it, I didn't mention my 4th rhythm problem which are PVC's, mainly because they are benign and do not damage your heart. They are also pretty common. After my PVA for the Afib and SVT I had many of them. The holter caught them and it was explained to me that up to 10,000 a day are of no concern! However, it would make sense to go back to your electrophysiologist and get them diagnosed. It would be important to see if there are any changes. Many times a lifestyle change can help but there are other solutions if they really bother you. Good luck, Martishka

Apr 2, 2018 · Heart Rhythm Conditions – Welcome to the group in Heart Rhythm Conditions

Hi Nancy, An ablation is a definite possible fix. I had several heart rhythm problems- Supraventricular tachycardia (SVT), atrial fib (AF), atrial flutter. My heart would clock in at around 230 BPM and was also irregular. Due to the complicated nature of my diagnosis I had 5 ablations. The first 4 weren't completed for a variety of reasons and the 5th, which was a PVA (Pulmonary Vein Ablation) was successful. Please keep in mind, that most people have one rhythm problem so it is much less complicated. I have been heart drug free for 5 years now and feel well. I am surprised that "death" was listed as a deterrent. I have not heard of any deaths related to this procedure and if there are , I am sure that the statistic is very low. Anyway. I had a very positive outcome and most people i know who have undergone the procedure have had the same experience. Good luck

Feb 16, 2017 · Afib after ablation in Heart Rhythm Conditions

Its been my understanding that there are two different types of meds to treat rhythm and rate problems. Since I had both types of rhythm problems I took two meds- one for each problem. I took propafenone or rythmol for atrial fib and I took metoprolol (and other drugs over the years) for my SVT (supra ventricular tachycardia or rapid rate). Until my 50’s I only took rate drugs. My rapid rate was even and fast (up to 230 BPM) When I developed AFib I was put on rhythm drugs. My rate was still very fast but with the AFib it was also uneven or “all over the place”. Over the years I was prescribed a variety of cocktails as the ones I was on became ineffective over time and I had a lot of break through problems. Sometimes the drugs are interchangeable. I agree with vermontrob – your husband would benefit from seeing cardiologists who are trained in this area- electrophysiology. A reputable EP lab would be a good start. Let us know what you decide.

Feb 15, 2017 · Afib after ablation in Heart Rhythm Conditions

Hi Colleen,My apologies, I found the link!Martishka

Feb 15, 2017 · Afib after ablation in Heart Rhythm Conditions

Hello Linda,
I too had perforation of the atrium during one of my 5 ablations. It is an unpleasant experience. And I totally understand how your husband feels about the meds. I found metoprolol difficult to tolerate as well as some others. I had 4 “regular” ablations; one of them resulted in the perforated atrium and the other four were unsuccessful since the doctors couldn’t find the origin of the “rogue” electrical signal. My 5th ablation was a PVA (pulmonary vein ablation) and it was terrifically successful! That was 4 1/2 years ago. In my situation the assumption was that when I went into SVT (supra ventricular tachycardia) or a very rapid, regular rate , it triggered atrial fib. I had SVT all my life and developed AF in my early 50’s. I’m 65. So I was eager to solve the problem since the AF was really complicating the SVT and the symptoms were becoming too difficult to sustain as well as having emotional repercussions. It was dampening my enthusiasm for sailing into remote areas! Anxiety is a very normal response when this happens! If your husband’s doctor feels that ablation is a viable choice I would jump at it. It sounds like mild exercise is triggering your husband’s AF. That is what happened to me during a 5 month sailing trip. I finally had to leave the boat by ambulance and that’s when I had my successful PVA. There are several drugs that can be tried but it seems that if there is a chance to resolve the problem permanently it might be worth another try. I wish your husband luck and please let me know how it goes.
All the best,
Martishka

Feb 15, 2017 · Afib after ablation in Heart Rhythm Conditions

Hello Colleen,I clicked the link you included in your email below and it took me to a submission from May, 2016.  I am not sure where the up to date discussion is regarding a “clean up ” ablation,I would be happy to respond if I had the reference.Best,Martishka