Mayo has a pots clinic I believ
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Has anyone ever told you about POTS? Doctors don’t like to go there because very difficult to diagnose. Buy I betlieve Mayo actually has
Donna; I would love to tell you all I know. A lady that I had been communicating with has just finished, her stem cell transplant. I’m sorry I won’t say anymore about her to keep her privacy. She’s still recovering so I won’t even ask her if she wants to share. But I am a different person. I want to tell you something about myself first so you can have more information to decide if you want my advice.
I’m 63 this June 12th. I am married to Kathy Raebel, who will be 63 on June 25th. My wife’s healthy and she has been a willing participant in my care. My health history is as follows. 1975 I found out I had MS. It was not severe and I stayed working until 2001. In 2001 I retired because of the MS causing my work to negatively affected. In 2005 I started experiencing a great deal of bone pain. For three years my Dr, an internist, said I was many things except any type of cancer. I eventually switched Doctors. After lab tests, within 2 weeks of my new doctor sent me to a hematologist. A bone marrow aspiration was done that day, I was told the results that day and I was admitted to the hospital that same day. It all happened so fast I didn’t have a chance to call my wife until I was in my hospital room. After all that, it’s been a journey.
Now, for how we communicate we can choose to do in different ways. I don’t like using this current sight because it is too public. Please contact me in 1 of three ways. Phone 1 262 308-5193. Email email@example.com or Facebook. David Raebel. If you do facebook just MSG me. If you call, do so anytime. I live in SE Wisconsin. I will wait for your reply. David
Sorry I’ve been slow in responding. I have quite an extensive history of other illness. While they are serious by themselves, I could still be ambulatory and somewhat functional if it weren’t for the hypotension when I stand. My BP drops up to 50 pts and my diaphragm closes and I can’t breathe. Mayo diagnosed an autonomic neurological disfunction that causes my problem. I hope they are able to get more answers for you.
I have been dealing with orthostatic hypotension for 7 years. Symptoms were dizziness and difficulty breathing when I would stand. In 2009 it took a turn for the worse. I decided to go to Mayo. They determined I had an autonomic nervous system disorder. I would be interested in knowing how much your problem is like mine. I will share my experience with you also. I know of nobody else suffering with this.