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Posts (13)

Nov 2, 2012 · Educating others on autoimmune diseases in Autoimmune Diseases

Mayo has a pots clinic I believ

Nov 2, 2012 · walk 23 steps and get totally out of breath and heartrate goes up in Digestive Health

Has anyone ever told you about POTS? Doctors don’t like to go there because very difficult to diagnose. Buy I betlieve Mayo actually has

Apr 19, 2012 · multiple myeloma in Blood Cancers & Disorders

Donna; how did your Dr visit go? Please don’t answer using this Forum. I am off FB at this time so please either call me at 262 308-5193 or email me at dwraebel@tds.net. Let me know how i can help.

Apr 12, 2012 · multiple myeloma in Blood Cancers & Disorders

What ever help I can give you I’ll share with you.

Apr 12, 2012 · multiple myeloma in Blood Cancers & Disorders

I hope you got my other reply. I find this forum confusing sometimes. If you want to hear from me call email or text. 262 308-5193 or dwraebel@tds.net

Apr 11, 2012 · multiple myeloma in Blood Cancers & Disorders

Donna; I would love to tell you all I know. A lady that I had been communicating with has just finished, her stem cell transplant. I’m sorry I won’t say anymore about her to keep her privacy. She’s still recovering so I won’t even ask her if she wants to share. But I am a different person. I want to tell you something about myself first so you can have more information to decide if you want my advice.
I’m 63 this June 12th. I am married to Kathy Raebel, who will be 63 on June 25th. My wife’s healthy and she has been a willing participant in my care. My health history is as follows. 1975 I found out I had MS. It was not severe and I stayed working until 2001. In 2001 I retired because of the MS causing my work to negatively affected. In 2005 I started experiencing a great deal of bone pain. For three years my Dr, an internist, said I was many things except any type of cancer. I eventually switched Doctors. After lab tests, within 2 weeks of my new doctor sent me to a hematologist. A bone marrow aspiration was done that day, I was told the results that day and I was admitted to the hospital that same day. It all happened so fast I didn’t have a chance to call my wife until I was in my hospital room. After all that, it’s been a journey.
Now, for how we communicate we can choose to do in different ways. I don’t like using this current sight because it is too public. Please contact me in 1 of three ways. Phone 1 262 308-5193. Email dwraebel@tds.net or Facebook. David Raebel. If you do facebook just MSG me. If you call, do so anytime. I live in SE Wisconsin. I will wait for your reply. David

Mar 12, 2012 · Is there anyone else out there with pure autonomic system failure? in Brain & Nervous System

Sorry I’ve been slow in responding. I have quite an extensive history of other illness. While they are serious by themselves, I could still be ambulatory and somewhat functional if it weren’t for the hypotension when I stand. My BP drops up to 50 pts and my diaphragm closes and I can’t breathe. Mayo diagnosed an autonomic neurological disfunction that causes my problem. I hope they are able to get more answers for you.

Mar 2, 2012 · Is there anyone else out there with pure autonomic system failure? in Brain & Nervous System

I have been dealing with orthostatic hypotension for 7 years. Symptoms were dizziness and difficulty breathing when I would stand. In 2009 it took a turn for the worse. I decided to go to Mayo. They determined I had an autonomic nervous system disorder. I would be interested in knowing how much your problem is like mine. I will share my experience with you also. I know of nobody else suffering with this.