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Posts (7)

Nov 23, 2011 · Hemicranial continua in Just Want to Talk

my mra was negtive……guess I will have to live with headaches.

Nov 21, 2011 · Hemicranial continua in Just Want to Talk

Hello……I just found out that my doctor says now that I dont have hemicranial continua because the meds she prescribed work for that condition. I had to change primary car physicians so I mentioned this to him and he has scheduled a MRA tomorrow. This shows some things that a MRI doesnt. I sure hope they find what the cause is. I do agree with you on the foods. There are certain foods I cannot eat.How are you?

Nov 14, 2011 · Hemicranial continua in Just Want to Talk

My sugar is fine.

Nov 13, 2011 · Hemicranial continua in Just Want to Talk

Thank you for the above info. It is very interesting. I have had headaches for 30 years but a few months ago, I started waking up early morning with a bad pain in my right eye. I always had a headache. Now my MD says I dont have the problem she diagnosed because if I had, the medicine she gave me would have stopped the pain. Now she doesnt know what the problem is but wants to keep prescribing different meds which I refuse to do. I also have a drooping right eye. Because my MRI was negative, she refuses to say that an MRA is necessary and I would have to pay myself. I have heart disease and also at high risk of a stroke and the reason I wanted a MRA was to rule out any problems with my blood vessels. I am at my wits end. She says OTC meds make headaches worse but nothing she prescribed for me worked. I am in a great deal of pain all of the time. She even admitted that my headaches and my heart condition could be related.

Nov 11, 2011 · Hemicranial continua in Just Want to Talk

HELLO….I AM NOT FAMILIAR WITH THE ALEXANDER METHOD. MAYBE YOU COULD ENLIGHTEN ME. AS FAR AS MY HEADACHE PAIN, I AM NOT SURE THE MD DIAGNOSED ME CORRECTLY. THE MEDICINE IS NOT WORKING AT ALL. I DONT KNOW WHAT IS NEXT. THX

Nov 10, 2011 · Hemicranial continua in Just Want to Talk

Hello…..actually I did go to an opthalmologist and he is the one who suggested the MRI. I had never heard of this either. Thank you so much for writing. It is nice to know someone cares. Have a great day.

Nov 10, 2011 · Hemicranial continua in Just Want to Talk

Hello…..I am new here. I was diagnosed last week with Hemicranial continua and put on Indocin which is suppose to be the medicine to take care of the problem. I have seen no relief. The pain is just as bad as before. I have a long history of headaches.I have learned to live with the pain because I have a high pain tolerance but this is different from my usual headaches and is really more than I can bear. This pain started a few months ago in my right eye….at first my MD thought it was Trigeminal Neurosa but after going to a neurologist, she said it was Hemicranial continua. I had an MRI which was ok…..only showed two ubo’s but everything was normal. I have asked my doctor about a MRA but she didnt want to do one then. I am about at my wits end…where do I go from here? I had a heart attack a year ago and take weekly IV iron treatments for anemia. I am 64 years old, active but having a hard time living with these headaches. Does anyone else out there have the same or similar problems? I would appreciate replies from anyone. Thank you/