About

Member has chosen to not make this information public.

Groups

Member not yet following any Groups.

Pages

Member not yet following any Pages.

Posts (9)

Apr 17, 2012 · I HAVE IRON DEFICIENCY ANEMIA AND HAVE TO TAKE IV FERRITIN TREATMENTS in Just Want to Talk

I HAVE IRON DEFICIENCY ANEMIA AND HAVE TO TAKE IV FERRITIN TREATMENTS EACH WEEK. USUALLY I GO FOR THREE MONTHS, OFF THREE MONTHS, BACK ON FOR THREE MONTHS. THIS LAST TIME, MY VALUES WERE IN THE UPPER NORMAL RANGE BUT MY DOCTOR WANTED ME TO CONTINUE FOR ANOTHER THREE MONTHS. THIS IS THE FIRST TIME I HAVE GONE WEEKLY FOR SIX MONTHS STRAIGHT. WHEN MY VALUES CAME BACK, MY FERRITIN LEVEL WAS 600—–3 TIMES THE NORMAL HIGH. I HAD COMPLAINED THAT I WAS STARTING TO FEEL BAD AGAIN, BUT MY DOCTOR INSISTS ON CHECKING MY BLOOD AND IRON ONLY EVERY THREE MONTHS. HE USUALLY RAISES IT TO TWICE THE NORMAL…..THIS IS THE FIRST TIME IT HAS BEEN 3 TIMES. I AM CONCERNED ABOUT THIS. DOES ANYONE ELSE HAVE THIS PROBLEM OR ANY SUGGESTIONS. THANK YOU!

Nov 23, 2011 · Hemicranial continua in Just Want to Talk

my mra was negtive……guess I will have to live with headaches.

Nov 21, 2011 · Hemicranial continua in Just Want to Talk

Hello……I just found out that my doctor says now that I dont have hemicranial continua because the meds she prescribed work for that condition. I had to change primary car physicians so I mentioned this to him and he has scheduled a MRA tomorrow. This shows some things that a MRI doesnt. I sure hope they find what the cause is. I do agree with you on the foods. There are certain foods I cannot eat.How are you?

Nov 14, 2011 · Hemicranial continua in Just Want to Talk

My sugar is fine.

Nov 13, 2011 · Hemicranial continua in Just Want to Talk

Thank you for the above info. It is very interesting. I have had headaches for 30 years but a few months ago, I started waking up early morning with a bad pain in my right eye. I always had a headache. Now my MD says I dont have the problem she diagnosed because if I had, the medicine she gave me would have stopped the pain. Now she doesnt know what the problem is but wants to keep prescribing different meds which I refuse to do. I also have a drooping right eye. Because my MRI was negative, she refuses to say that an MRA is necessary and I would have to pay myself. I have heart disease and also at high risk of a stroke and the reason I wanted a MRA was to rule out any problems with my blood vessels. I am at my wits end. She says OTC meds make headaches worse but nothing she prescribed for me worked. I am in a great deal of pain all of the time. She even admitted that my headaches and my heart condition could be related.

Nov 11, 2011 · Hemicranial continua in Just Want to Talk

HELLO….I AM NOT FAMILIAR WITH THE ALEXANDER METHOD. MAYBE YOU COULD ENLIGHTEN ME. AS FAR AS MY HEADACHE PAIN, I AM NOT SURE THE MD DIAGNOSED ME CORRECTLY. THE MEDICINE IS NOT WORKING AT ALL. I DONT KNOW WHAT IS NEXT. THX

Nov 10, 2011 · Hemicranial continua in Just Want to Talk

Hello…..actually I did go to an opthalmologist and he is the one who suggested the MRI. I had never heard of this either. Thank you so much for writing. It is nice to know someone cares. Have a great day.

Nov 10, 2011 · Hemicranial continua in Just Want to Talk

Hello…..I am new here. I was diagnosed last week with Hemicranial continua and put on Indocin which is suppose to be the medicine to take care of the problem. I have seen no relief. The pain is just as bad as before. I have a long history of headaches.I have learned to live with the pain because I have a high pain tolerance but this is different from my usual headaches and is really more than I can bear. This pain started a few months ago in my right eye….at first my MD thought it was Trigeminal Neurosa but after going to a neurologist, she said it was Hemicranial continua. I had an MRI which was ok…..only showed two ubo’s but everything was normal. I have asked my doctor about a MRA but she didnt want to do one then. I am about at my wits end…where do I go from here? I had a heart attack a year ago and take weekly IV iron treatments for anemia. I am 64 years old, active but having a hard time living with these headaches. Does anyone else out there have the same or similar problems? I would appreciate replies from anyone. Thank you/