Ask to speak with Dr. Brian O’Neil at the Mayo in Rochester…he is amazing!
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I didn’t have the same type of brain tumor as you so, I can’t really answer your question….I am assuming the Mayo clinic is advising you of this radiation? Did they explain to you why? I hope you find the right answers!!!! keep us posted. We all can relate somehow to any brain tumor issue.
what is his prognosis?? I know this discussion was back in November…but I had a glioma removed at Mayo….it was a mixture of the asto and the oligo. Had 28 day of radiation too. What grade was it??? Talk to Brian O’neil at Mayo in Mn.
He is the GURU of all of this!
Do you have to have regular MRI’s? Did you have your surgeries at the MAYO clinic? Sorry i have a lot of questions…hopefully it will remain the same size for the rest of your life!!! Sounds like you have a positive outlook! I guess you have been dealing with this since you were 9 so it is just part of life. (??)
I had or have headaches in my forehead and behind my eyes for the past 3 years. I finally had an MRI which showed I have an GLIOMA….I had it removed at the Mayo clinic in MN. The headaches tho, had nothing to do with the GLIOMA, and I still have them.. I was put on a migraine medicine which seems to help me!!!