What does exercise do for you?
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This is a very very late reply to your post, but you know, I’ve been distracted by this damn’ PMR. My symptoms are like yours but pain does not move around– it is mostly in my knees and in my legs above the knee– also in my fingers, triceps, and muscles of the sides of my trunk. I take 25mg/day Vicodin and 1800 to 2400 mg/day ibuprofen. I think the ibuprofen helps better. In fact when I had a severe flareup around the left knee the ibuprofen worked *better* than 15mg of oxycodone. I guess the anti-inflammatory action of the ibuprofen was required.
I cannot type fast anymore and make too many mistakes. Worst of all my balance has gone to hell and I run into walls, fall over, etc. We don’t know yet whether that is PMR related but I am going to a neurologist. From what I hear it could be an impeded or blocked carotid artery, but that’s not from PMR, I believe it is atheratomatous plaque (from the same atherosclerosis that produces a heart attack). Lucky you can diagnose it with an ultrasound!
THANK YOU for your info. Anything else you can think to telll me?
My doctor has said most people get rid of it in under two years (at least assuming the dozen or so he’s seen in 25 years of practice are representative). Then again my rheumatologist says some people have it for the rest of their lives or have it change into rheumatoid arthritis. I wish I could see into the future.
PMR must be a bit uncommon, though I understand it is the major cause of widespread muscle pain and fatigue in patients over 50 or 60. I’d like to connect with other sufferers to talk about their experiences, compare notes and discuss treatments. For instance, I am intolerant of prednisone, which means I’m on a minute dose, and my
SED rates are not improving. Will shorting myself on the prednisone just affect the severity of my symptoms or could it affect how long the PMR will remain with me (assuming, of course, it is going to go).