Hi, Yes over all the fatigue has improved, still have days, but not overwhelming and as never ending as it was. I exercise on days that my energy level is tolerable. This could mean just taking a walk. I swim now that it’s summer, lake near by, lucky. Swimming is the most comfortable, weightless. Also do yoga…as best I can, improving with time now, and some thi chi. The more I persued these activities on good days, the more good days I have, for the most part. Like I said earlier…I still have days, sometimes a few clustered where I just can not shake the fatigue, which is usually clusterd with a fog. I have also improved my diet. Little dairy, with the exception of fermented (keifer, yogurt etc.) I do eat some cheeses like feta, goat etc. I rarely consume red meat etc. I am a believer in keeping the old plumming (bowels) moving…toxins build up when things are sluggish.
I keep hydrated all the time! Lots of comfort measures go a long way. Currently am not on any meds with the exception of Xanax for sleep. That way I get a whole six hours. Sleep depervation from the pain was making things spiral awhile back. I utilize bee venom for pain/inflamation and it works very well. Not recognized in this country, but it is utilized allover the world. I choose this path of care as the typical options all sound awful. Just reading on a number of sites, no one improves and the side effects bring more worries, more meds, more ills. Nothing will cure these issues. I’ve decided to live with it the best as possible and so far the improvement is good, steady and appears sustaining at this point. But I will never say never…who knows what the future will bring.
I have found that boric acid, a mild solution I make is the best eye wash, do it two, three times a day. It is very effective and inexpensive, and for me better than many of the drops on the market. Many of the drops burn my eyes…sensitive. I do carry moisture drops with me if I’m not home. And have some of the most ugly sunglasses, but they fit the critera…protect my eyes from the sun, wind/breezes and air handeling units. Boy they suck the like out of your eyes! The wrap around, Jackie O. or fly eye design work well
I also take a number of supplements. Lutien (eyes), fish oil, bcomplex, milk thistle, dandelion, hawthorn, flax oil and add extra olive oil and avacodo oil to dishes prepared. Think this has made improvments with skin, eyes, etc.
There is a number of sites out there. Sjogrens world, Sjogrens Syndrome Foundation etc.
Good luck @marilly