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Oct 1, 2012 · Seeking Advice in Autoimmune Diseases

See a Rhumy. Sjogrens and many other Autoimmune illness can cause the symptoms. Sjogrens is generally thought of as dry eyes/mouth. often blown off by providers. IT can affect every organ in your body. I was dx with Sjogrens, Raynauds, Thryroiditis, ?lupus, RA and ……Bcell Lymphoma. ALL at once! (The Rituxan infusions where difficult, but post treatment what a world of difference, a gift. But, they wear off and long term affects are just as frightening.)Yet for 4 years I went and complained fo body aches that moved around. Chronic neck pain (lesion was growing around the base of my neck and I was told over and over it was from chronic inflammation….cancer. Dry eyes, mouth, skin, overwhelming fatigue, sleep disturbances (waking achey, have to move) random nausea, hightened and then decreased sence of smell. One can view it as a nightmare.. and it was and has been in MANY ways BUT…during this time I increased fish oil, flax oil, consumed large quantities of water, and still do. I reviewed my diet and although I have always been conscious of good nutrition made changes anyway to see if these helped. They have. Little or no sugar, aside from natural occuring in fruits and juices etc. (more difficult that it sounds…sugar is in everything!) I was an avid dairy lover…just fermented now (yogurt and keifer daily) sometimes soft cheese like goats, feta etc. Now am trying a curtailed gluten consumtion and don’t see much additional change, but will keep at for awhile longer.
The only med I take is xanax in the pm for a 6 hour straight sleep period. Occ have to nap in the day time. I exercise on good days, cause when the bad days hit, not much gets done….the thing is they are not as common as frequent as they where although they are unpredictable at best and this is fustrating…..but learning to go with the flow and not feel like a slug…it is what it is.
It is hard to make changes, comfort measures if you will, they take effort, energy and commitment…not easy when you are so fatigued/fogged.
You sound like a commited partner, I am lucky to have this also and between the two of you hopefully you will find a better spot. Meds are not always the anwser…I have opted so far not to take any DMR’s etc. Nothing will eradicate these ills but comfort measures and some lifestyle changes go a long way…And alternative therapies may also help….massage etc, etc.
Good Luck to you both.

Oct 1, 2012 · VBAC in Women's Health

At least a year is what the doc I workded for told patients. Be sure the hopital you plan on birthing at allows this…not all do, it does have it’s risks.

Oct 1, 2012 · This condition is treatable by a competent GYN. It is not as

This condition is treatable by a competent GYN. It is not as uncommon as one would think. Good Luck. @susanjennings

Aug 3, 2012 · Have you had a breat exam lately? Could be a few things,

Have you had a breat exam lately? Could be a few things, something as simple as a clogged, infected milk duct. Not a walk in the park, but not cancer. @vaee

Aug 3, 2012 · Hi, Yes over all the fatigue has improved, still have days, but

Hi, Yes over all the fatigue has improved, still have days, but not overwhelming and as never ending as it was. I exercise on days that my energy level is tolerable. This could mean just taking a walk. I swim now that it’s summer, lake near by, lucky. Swimming is the most comfortable, weightless. Also do yoga…as best I can, improving with time now, and some thi chi. The more I persued these activities on good days, the more good days I have, for the most part. Like I said earlier…I still have days, sometimes a few clustered where I just can not shake the fatigue, which is usually clusterd with a fog. I have also improved my diet. Little dairy, with the exception of fermented (keifer, yogurt etc.) I do eat some cheeses like feta, goat etc. I rarely consume red meat etc. I am a believer in keeping the old plumming (bowels) moving…toxins build up when things are sluggish.
I keep hydrated all the time! Lots of comfort measures go a long way. Currently am not on any meds with the exception of Xanax for sleep. That way I get a whole six hours. Sleep depervation from the pain was making things spiral awhile back. I utilize bee venom for pain/inflamation and it works very well. Not recognized in this country, but it is utilized allover the world. I choose this path of care as the typical options all sound awful. Just reading on a number of sites, no one improves and the side effects bring more worries, more meds, more ills. Nothing will cure these issues. I’ve decided to live with it the best as possible and so far the improvement is good, steady and appears sustaining at this point. But I will never say never…who knows what the future will bring.
I have found that boric acid, a mild solution I make is the best eye wash, do it two, three times a day. It is very effective and inexpensive, and for me better than many of the drops on the market. Many of the drops burn my eyes…sensitive. I do carry moisture drops with me if I’m not home. And have some of the most ugly sunglasses, but they fit the critera…protect my eyes from the sun, wind/breezes and air handeling units. Boy they suck the like out of your eyes! The wrap around, Jackie O. or fly eye design work well
I also take a number of supplements. Lutien (eyes), fish oil, bcomplex, milk thistle, dandelion, hawthorn, flax oil and add extra olive oil and avacodo oil to dishes prepared. Think this has made improvments with skin, eyes, etc.
There is a number of sites out there. Sjogrens world, Sjogrens Syndrome Foundation etc.
Good luck @marilly

Jul 10, 2012 · liver failure in Digestive Health

It is a wonderful herb. I take it daily. Lots of info out there about it. Susan Weed is anwonderful herbilist, Rosemany Gladstar etc. Also alot of scientific data out there on the weba as well. It is inexpensive and effective.

Jul 10, 2012 · Undiagnosed - sjrogrens, lupus? in Autoimmune Diseases

Dry eyes, dry mouth, insomnia think Sjogrens/autoimmune issues. Many of the symproms overlap. Sjogrens is most known for dry eyes/mouth and painful joints, sleep issues, foggy brain. See a Rhumatologist.

Jul 10, 2012 · wannalivepleasehelp in Brain & Nervous System

Wow, what a time of it you have had. So many symptoms from various illness overlap. Maybe you should see a Rhumy. You mentioned MS. There are so many autoimmune disorders…Lupus, Sjogrens, RA etc. that mimick some of the symptoms you experience. You should discuss this with your physician. Educate yourself on these topics before you go so you are prepared.
It is diffiult to not worry. Meditation is a very good method to bring the mind to a more peaceful state. It may be helpful to attend a class or two or tap into someone that can help guide you through the process a few times. It helps with clarity/focus, relaxation etc. Breathing exercises help also…yoga etc. Anything that helps relaxation. Not always easy when you don’t feel well, but give it a try and see a Rhumy. You will get to the bottom of this, trust your instinct.
Another thought is to keep a journal of activities and symptoms, and remember to include the positives in your life as well.
Good luck with this journey.