I was going to do that program but my insurance wouldn’t pay for it and I couldn’t afford to pay out of pocket. I am glad to hear it worked for you. If you don’t mind me asking how did you pay for it?
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How long have you had fibromyalgia? How severe is your case? If I ask a question please feel free to tell me you don’t want to answer the question. I first went to Mayo Dec. 29,2010 and met with Dr. Wang the rheumatologist and had blood work done. I had seen a rheumatologist in South Carolina where I live and saw him for a year and a half he did not do the normal blood work that should be done when someone is complaining of joint pain. I went back to Mayo(Jacksonville) in February on the 9 and 10. I saw Dr. Wang on the 10th which happened to be my 40th birthday when he gave me my results which are: Fibromyalgia/ Central Sensitization Syndrome, Baker’s Cyst(already knew about this), Depression, low iron, low calcium, osteoarthritis, chronic fatigue syndrome with chronic diffuse myofascial pain which signs started showing about 4 1/2 yrs ago and would ask every doctor I ever saw even my ob-gyn if they could think of why I was having this pain, just in my elbows and knees. Finally after wasting all that money seeing a rheumatologist and him telling me there was nothing else he could do for me I went to my family physician and told him if he did not send me somewhere that could tell me why I was having so much pain then the next time he saw me I would have nothing below my elbows and nothing below my knees and he said the only thing I know to do is to send you to the Mayo clinic in Jacksonville. By this time I am already on a Duragesic (Fentanyl) 50 mcg patch. I wish I would have gone years earlier because Dr. Wang said my pain would not be as bad as it is and I would still be able to work. I am a certified pharmacy technician, but I had gotten my Emergency Medical Technician license as a Basic, and right after I got my wonderful birthday diagnosis I had just finished taking an EMT-I 85 class which is a step up from a basic. I still have one test to take but since my diagnosis I have not been able to focus enough. I have taken it one time and I get two more chances but I have to get a handle on everything else that is going on in my life right now before I go test again because I don’t want to fail again I don’t think I could handle the disappointment.. That is basically my story would love to hear yours as long as you feel comfortable talking about it. Dr. Wang suggested that I see a counselor which I am but I think talking to someone that is possibly dealing with the same thing I am will be a bonus. Can’t wait to hear back from you.
Glad to know that I am not the only one that cries from this horrible pain. I feel like my depression got worse after I was diagnosed. When you said God doesn’t give us more than we can handle, I think I have given my fair share and this diagnoses just puts the cherry on top. I had to give him my twin boys six months apart, raise my oldest son by myself even though I was married to his father. I got no support from my ex-husband when I buried my children. When I buried the second twin Shelby I really got depressed and his response was they are dead get over it. I have other issues in my life to where I thought I was paying my dues but when I was finally diagnosed it was the tip of the iceberg. I became so angry and still am because I think I have given plenty and then getting diagnosed with a non-curable disorder doesn’t make me to happy.
How can you stand the pain. It is hard to get other to understand because we look normal, I think my depression has gotten deeper since my diagnoses because I have had so much heartache in my life and I ask myself what more do I have to be put through in my life, haven’t I suffered enough. I would love to read your presentation if you still have a copy of it and it is something that you can e-mail. If it is something you can e-mail could you e-mail me a copy to firstname.lastname@example.org. Maybe it will help me get others to understand.
First of all find a good orthopedic surgeon and have the bone spurs removed. I found those before I was diagnosed with fibryomyalgia. Had to spend one night in the hospital and wear a soft collar for a week mine was C5 and C6 was the best surgery I ever had no problems after that. I was diagnosed with fibromyalgia in Feb of 2011 on my birthday. I was taking Cymbalta but my second visit to Mayo got changed to Pristiq. I have to wear a Duragesic patch but still have breakthrough pain and I am going to Mayo on the 11th and something is going to have to change. I have had to quit work and right now trying to get disability.