LOOK AT MY NEW STATEMENT ABOVE. VERY IMPORTANT.
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LOOK AT MY NEW STATEMENT ABOVE. VERY IMPORTANT.
LOOK AT MY NEW STATEMENT ABOVE DATED 2/28/12
Look at my new statement above.
I’m back I’ve been diagnosed with BMS. A Pain Management clinic put me on hydromorphone, vicodin for my back, gamapentin 1200 mg a day for BMS and Baclofen for BMS,but dont know if Baclofen does anything, just read about it in an article. I chew sugarless gum Trident only all day and one piece in my mouth when I sleep. Must be sugarless Trident, it helps take the pain away. This answer is to ALL of you. I tried to get into Mayo Clinic in AZ., they REFUSED ME BECAUSE I WAS ON MEDICARE. MAYO CLINIC YOU SUCK. I found a specialist finally on the disease Dr. Joel Epstein. He seems very famous. Takes Medicare patients. He works out of Mt. Sinai Hospital, and flys to Chicago, Bellingham, Wa., by my house and Vancouver, Canada. In his article he lists all the medications and the correct doses to take to control or remove BMS. So, please look up his article and take it to your doctor and get on the medications. If you have a problem finding call me at 360-333-1771.PLEASE READ IT!!! IMPORTANT
Tiny, I have been to many including an ENT who was so stupid he blaimed it on my degen. disc disease. I researched BMS, which I thought I had and learned that BMS is sometimes misdiagnosed with GLOSSOPHARYNGEAL NEURALGIA, which I am possitive I have. Symptoms are very severe burning of throat, larynx, tongue and voicebox. I even loose my voice sometimes. I have had it since Dec.,2010. What you and I need is a neurologist or NEURO-SURGEON. Surgery is the only way to correct it if medicines do not control it. In my case medicines do not work. I just rec’d a phone call from Univ. of Washington,Neurology, they are going to see me. If I am not pleased with them I am flying to the Skull Base Institutete in southern Calif. they do the surgery there. You can see the surgery performed live on their internet. If you can’t find them let me know,I will help you. Go to Skull Base Institute on internet and click on Trigeminal Neuralgia,watch video!! Also access GLOSSOPHARYNGEAL NEURALGIA, Copy it and take to your doctor. I take gabapentin and hydromorphone or vicodine for pain, they don’t help enough, I want the surgery. Hope I helped you. Nanette write again,but see neurologist or neuro-surgeon NOT ENT. Good Luck
Oct 15, 2011 · Thank you for the welcome Nanette. I am sorry I don't have in Just Want to Talk
Jim, I was on gabapentin with Lyrica but almost had a heart attack or something, so they took away gabapentin and now I am on lyrica only. My dr. is referring me to a dr. at the Univ. of Washington. I need several neurological tests, just had MRI, next I believe I need a cat scan. Wish me luck, I live in 24 hr. pain. Hope you are doing well. Yes I suffer from depression from living with so much pain all the time. Sorry, to take so long writing, your message did not show up in my inbox. Don’t know why. You take care, Nanette
Hi Bob, sorry to take so long getting back with you. I’ve been quite ill., in extreme pain. My doctors took no tests to diagnose me. I looked in the computer and diagnosed myself with the CORRECT DIAGNOSIS, can you believe that. Since then I read my papers on BMS again, and noticed one small sentence, stating it gets misdiagnosed with Glossopharyngeal Neuralgia, so I invested the computer again, and looked it up. WOW! It had all my symptoms, which Burning Mouth Syndrome did not really have my correct symptoms, except I had such severe mouth, tongue, and throat pain, that I eventually became suicidal; I could not LIVE with that severe of pain in my mouth any longer. If you have a computer please look up GLOSSOPHARYNGEAL NEURALGIA, THE SYMPTOMS FOR IT IS SEVERE TONGUE, MOUTH AND THROAT all of which I had. I KNEW at that moment it was my true diagnos, and the Dr. who help write the article is in SEATTLE, YEA he’s by my house, what a miricle. My Pain Dr. immediately ordered an MRI to see if I have a brain tumor and is referring me to Dr. Dugall in Seattle. I hope he knows all about it since he wrote the article; I have been ill with it since Dec.,2011. which is what made me eventually suicidal, my dumb doctors where I live in a small county, gave me nothing for my pain, and the several specialists I was referred to did not diagnose it, so I was in severe pain 8 mos. without a diagnosis or pain killers, to make a long story short; I’ve been thru Hell and back. I hope my letter helps you also with your mouth pain. PLEASE LOOK UP GLOSSOPHARYNGEAL NEURALGIA, you may have the same symptoms if you have a burning tongue. Must quit now, good luck to you. KEEP IN TOUCH, Nanette Hathaway, Mt. Vernon, Washington.
Sep 25, 2011 · Thank you for the welcome Nanette. I am sorry I don't have in Just Want to Talk
Yes Jim, I have very,very severe pain. I am on medication for it. I also get depresses from all the pain. I now believe all patients with severe pain get depressed to some extent, sorry to hear of your pain, hope you don’t suffer too much. I sure do at times but trying to get it under control. Good Luck to you too. Best wishes, Nanette