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Posts (7)

Apr 17, 2012 · cervical dystonia in Spine Health

We should start a group, i never run into anyone with dystonia, not even in the neuro lab where i get my botox injections. Which work wonders for me, until they start to wear off, like now. i’m going for a walk tho, it’s a beautiful sunny cool day, perfect to change that brain chemistry.
Do any of you find that certain foods bother you too? i also have RA so i have to seriously restrict my diet just to stay feeling OK.
What’s a MyoBloc, is that botox?

Sep 16, 2011 · Don't know what kind of specialist to see in Just Want to Talk

One more important thing, when you do get another blood test insist on a complete blood panel with all levels including thyroid, vitamins & minerals.

Sep 16, 2011 · Don't know what kind of specialist to see in Just Want to Talk

Not to worry, with the state & trend of our economy , by 2014 when Obama Cares goes into effect it will be a welcome mandate by the 98% of us that can’t afford to be sick.

Sorry about the punitive legislation in Missouri, it’s a crime against Civil Rights & void of any hiuman dignity.

In the mean time, you must continue to be as clever as you have been so far.

Environmental or genetic is not that far fetched. Auto immune diseases do run in specific ethnicities, Scandivavian, African American and do afflict a higher % of women than men.
Our air, water, soil, food and almost everything is tainted with industrial toxins or is petroleum based. How can that not effect us all in a severe metabolic way?

1) many times how you are perceived in a social service setting is all about the language used with social workers that are over worked & underpaid.. As your situation changes revist all of your options. Ask these providers exactly what it is you need to do to qualify and kiss butt often, if it applies.

2/3) you may or may not need an exact diagnosis to apply to assistance programs. The requirements & benefits vary in random ways. Some are research, discounts or just full on grants. Some require poverty level income and some don’t require anything…
If you do need a diagnosis or an assumption of a diagnosis, try to tap one of your FC Dr.s who would tend to be more empathetic towards your problem solving goals & lack of medical ins.

Vitamin deficiencies can be serious, many chronically ill or long term med/drug users have constant depletion of vital anti oxidents due to these stresses that need daily replenishing.

Deficiency in V-D & B complexes can lead to almost every symptom you describe. These 2 vitamins effect hormonal levels, the heart, muscle functions, brain activity, vital organ functions, the skin, hair, nerves, mental function, depression, they also prevent inflamatory & other diseases, the list is endless.

If you can afford to take the A, B, C’s of antioxidents i’m sure you would feel better and be able to narrow your focus to what is persistant once these levels improve. 2 weeks to 30 days tops with continued improvement as time goes on.

The rule of thumb is A, Super B Complex, C, D-3 , Callcium (2,000 mg) with Magnesium and flax seed oil or fish oil with omega 3, 6 & 9.

If you cannot afford these or are not eating properly a multiple vitamin with iron of any brand would be best and the flax seed oil..

Hopefully the Free Clinic & the assistance programs can work in tandem to help you navigate thru this. The most important piece of advise is to not give up, stay persistent so you can get thru this. You can have your life back, it does not have to be ruled or oppressed by this temporary situation.

You are a smart young woman so find a smart dr. at that clinic and don’t give up.

Let me know if i can help.

Sep 15, 2011 · cervical dystonia in Spine Health

Depression is half this or any other chronic disease, get some fresh air, sunshine and keep moving. i know how hard it is, i’m a 30 year dystonia VET.. Either move it or loose it, you will feel better. and try some therapy, physical & mental, it’s good to have someone 100% on your side.
Where do you live? i will come and get you if you are close enough.

Sep 15, 2011 · Don't know what kind of specialist to see in Just Want to Talk

How can you not qualify for medicaid if you don’t have a job?
Have you applied for Welfare, this would clearly grant you access to medicaid.
or,
1. try the ER. ERs can’t deny you and have access to state subsidized programs that may not be available to social services offices or would otherwise take months..
Don’t be shy, cry if necessary. Make sure to ask inside the ER, to enroll you , if they agree, it would be retroactive to that date.
or,
2. Are there any Free Clinics in your area?
or,
3. check online for Medical Assistance Programs. For example; fibromyalgia assistance programs at a .gov site, you can connect with options of grants or programs of multiple choices. if you don’t have an income you would qualify. Fibromyalgia would be a feasible disease to claim to get your started, it covers almost everything painful from head to toe and does not have a specific diagnostic blood test.

Sep 12, 2011 · Don't know what kind of specialist to see in Just Want to Talk

Depending on what state you live in, you may have state aid for HC coverage. If you want to find out, go to Healthcare.gov. It couldn’t be more simple. Fill out the form to find out what is available in your area, and what it will cost according to your income. If you don’t have an income there are options.
Mayo takes almost all programs & is excellent at diagnostic medicine.
Start by requesting a physical due to random health issues & accute problems.
Have your previous tests transfered electronically.
Save your discussion for the Dr.s office.visit, If you try to determine what kind of a Dr. you need while making the apt. you may sabotage your own diagnosis. Leave that to the experts.
Keep being proactive & persistent and you will resolve this.

Sep 12, 2011 · Spasmodic dysphonia in Ear, Nose & Throat (ENT)

i have cervical dystonia and also receive botox injections, for many years. i often have minor, could be major, irritating problems with swallowing & choking, especially right after botox, i could choke on my own spit if i don’t pay attention. Don’t know if this is similar to what you are experiencing but i have so many detailed related issues that i overlook some and often forget to mention them to my neuro, which is what you should do. Get a consult. Hang in there & be nice to yourself. If you are patient you will be amazed at how resilient the body, spirit and mind can when adapting to chronic health/pain issues, i’m practically a pro..