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Posts (6)

Sep 5, 2011 · mixed connective tissue disease in Bones, Joints & Muscles

You sound like you have had your share of illnesses! I am sorry to hear this. I dont take mexotrexate. Why? Maybe because my meds are working ok right now.Over the years i have had to change and try a lot of meds. My fingers used to be real tight and have always been in pain. They are back to normal. my feet and knees are real tight.My body is starting to be very stiff. i cant bend or lean over or get anything from the floor. I was just diagnosed with rheumatoid about 6 months ago. Wierd huh? My whole body aches. My muscles and my bones This scleraderma can make you lifeless…I forgot to mention that when i take aniibiotics it makes me sick and weak, like i have the flue bad. Some times this puts me in the bed….I am having alot of trouble with candida of the mouth. I cant seem to get rid of it totally. It gets better and then starts back up. The doctor said its because of the sjogrins. It has attacked my moisture producing glands and my mouth nose and eyes are dry….I dont like taking prednisone because i read it makes your bones brittle, but my bones messed up before i ever took any predicsone. It also can cause lymphoma….Scarry…
I dont know any body else with scleraderma except you.. I know a few people with lupus though…..I am like you…Its nice to talk with someone who understands your illness.. I have 8 brothers and sisters….They think i have a lot of differnt things wrong with me. They cant comprehend its all one thing…scleraderma. They are like talking to a brick wall.None of them have illnesses.. I am a hard worker, i am not a lazy person, so it took a long time for me to realize i cant beat this stuff, that i work around it. I do things when i feel well and dont do anything when im tired..You have to give in to this illness and take care of yourself or it can make your life miserable or worse shorten your life.

Sep 2, 2011 · mixed connective tissue disease in Bones, Joints & Muscles

Keep resting untill you feel rested up, no matter how long it takes! You will know when you can get out of bed!!! I take welbutrin for my depression. no complaints. also have rheumatoid arthritis and only take 5mg of prednisone..when i get worse doctor ups my doseto 20 or 30mg for a while, then go back to 5mg. Everybody is different. placquenil i took for a few years and decided it wasnt doing any good. Quit taking it. I take flexerill(2 at night) to sleep, hydrocodone for pain, cyclobenzaprine(2 at night) for muscle pain. protonix (2 a day) for acid reflux, Do you have knee problems?? I had both knees replaced. B-for i got sick i never had to take medicine. But the best thing i can say is that when my meds got all worked out,,,,my health got a heck of a lot better.

Sep 2, 2011 · Hip & knee pain -- when to consider joint replacement? in Joint Replacements

I waited untill i had to get in a wheel chair…When you have it done you will probably say what i said…”i wish i had done it earlier! “Had both knees done at same time…because i knew if i had one done i wouldnt go back!!! Soi had both done.I do every thing now..The only thing i cant do is lean down on my knees (like when you squat down on your knee).otherwise its great! Besides i had a 78 year old lady tell me she had them done at once, and i thought if she can i can..so i did.

Sep 2, 2011 · mixed connective tissue disease in Bones, Joints & Muscles

Since i have been sick i have spoken with hundreds of people and have learned a lot from conversations with them. You need to know that different doctors will diagnose you wiith different auto immune illnesses. i call this the yes/no/yes/no diagnosis!! A lot of times they get grouchy when you ask and make comments.I had one doctor who never told me what he thought i had, and when i changed doctors i read on my records that he diagnosed me with crest/scleraderma. It made me mad.
Enough of my gripes about my docters not worth a darn.I’v had a few good ones….that wound up leaving to take other jobs and you know the rest,
I can tell you what i do and many other people like us do.Sometimes i get so tired that i cant even get up to do anything..Its not a normal lazy like most people that are tired have. At first when i did this i really thought i was going to die. It was that severe.It comes and goes. iv learned that if i am going some where , i have to rest first and kind of build up my strength. Another thing is any kind of stress or even something happy like going on vacation or planning an event, takes a tole on me.The Sun Is My Enemy is a book about lupus that is very helpful. I think i read it about 10 times. Its bad enough to have this illness, but its even worse with all the problems associated with the doctor problem!!!!! I get rashes every once in a while and my doctor ups my prednisone. Before i started taking my meds is when i got really sick. i take about 10 medicines…itx funny, that i dont have a problem with my dermatolgists either… hes a sweet heart and diagnosed me right off…Right now i am in the process of finding a new rheumatologist, and my internist is treating me.

Sep 2, 2011 · mixed connective tissue disease in Bones, Joints & Muscles

You have been diagnosed with an illness that most docters are hesitant to diagnose because nobody has exactly the same symptoms, and because most docters dont have the experience and want to treat you by what they read in their books and not by your symptoms. Rashes are very common with lupus. Stay out of the sun! Make sure you take your medicine like you should, You need to read as much as you can on lupus/scleraderma. Good luck on finding a good docter, because they are hard to find! If you find one you better hang on to him! I live in georgia and we have no good rheumatologists around here. Through my 15 years of research on this illness, most of us(people with scleraderma/lupus) have gone through the same problems. I wish someone had told me this stuff when i was first sick, it would helped me alot…and i hope it will help you!

Sep 2, 2011 · Looking to talk with others that have an auto immune deasease. in Just Want to Talk

Looking to talk with others that have an auto immune deasease.