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Sep 8, 2011 · I have been diagnosed with Nephrotic Syndrome (minimal change) at 5yrs old in Just Want to Talk

I have been diagnosed with Nephrotic Syndrome (minimal change) at 5yrs old & I’m currently 37yrs old, I was on a 10yr remission from 17yrs old until the age of 27yrs old when it came back & here I am dealing with this disease again; looking to connect with other patients that have Nephrotic Syndrome & does this disease progress into severe kidney damage or renal failure, if so I guess I can say I have been blessed because it hasn’t progressed. I just had a renal biopsy last week & awaiting my results. I take Cellcept & Prednisone & I’m spilling 4 grams of protein currently and I’m amazed I haven’t gained 40-60lbs of water retention, doctors say its due to the cellcept. Looking to connect with others that have the same diagnosis.