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Posts (9)

Mar 23, 2018 · Adjusting to life with temporal arteritis in Stroke & Cerebrovascular Diseases

My experience is described in detail, with charts, etc at :::
http://frontal-lobe.info/gca/gca.html I will update it, but with nothing important. I am now at 5 mg prednisone and GCA is not a problem.

Mar 22, 2018 · Adjusting to life with temporal arteritis in Stroke & Cerebrovascular Diseases

The biopsy is done with a local anesthetic, It is a simple, quick, procedure. But it is NOT necessary to diagnose GCA and may give a false negative, misleading result.

Mar 22, 2018 · Adjusting to life with temporal arteritis in Stroke & Cerebrovascular Diseases

Note that a biopsy is NOT required to diagnose GCA. *Immediate* 60 or 80 mg of prednisone to prevent loss of vision. If the prednisone reduces or eliminates the symptoms in a day or two, this confirms the diagnosis of GCA. In fact, the biopsy may be negative and misleading.

Mar 22, 2018 · giant cell arteritis in Autoimmune Diseases

see my: http://frontal-lobe.info/gca/gca.html

Giant Cell Arteritis; One Man's Exciting Experience
GCA – also known as Temporal Arteritis

also in more detail here:

https://www.amazon.com/Giant-Cell-Arteritis-Mans-Exciting-Experience/dp/0931400058/ref=asap_bc?ie=UTF8

Oct 7, 2011 · PRENDISONE TAPERING in Bones, Joints & Muscles

What condition?

Aug 29, 2011 · I was diagnosed with temporal arteritis 1/2010. in Stroke & Cerebrovascular Diseases

No, I have not experienced tingling or numbness. I’m sorry I can be of no help on this. Let us know what your doctor says.

Aug 26, 2011 · I was diagnosed with temporal arteritis 1/2010. in Stroke & Cerebrovascular Diseases

I know little about the “nasty side effects” of prednisone except the problem of too-quick withdrawal. That put me in the hospital at the drop from 15 to 12 1/2 but that was easily repaired. I wouldn’t count on having an ulcer in six months. You know more about your stomach acid than the doctor does — but be aware of it. A bone density test is a good idea — so you know where you stand (no pun intended). Walking hills might strengthen bones more than Fosamax does — my opinion.
No one knows why some persons get GCA or PMR. With your genes you should plan your finances to last to age 105 at least. All that said, please remember that I am not a doctor — just a GCA patient who reads. Work with your doctors. You have many good years ahead.

Aug 25, 2011 · I was diagnosed with temporal arteritis 1/2010. in Stroke & Cerebrovascular Diseases

The customary supplements are calcium, vitamin D and small aspirin.
Also a stomach protector and a bone protector — I refused both of those.
I do not have stomach problems such as heart-burn and my bones are built
on Wisconsin cheese and exercise and have the density of a 55-60 year old. I’m 90.

I have strong feelings against doubtful drugs. (including sleeping pills)

Exercise, such as hiking, is necessary for good health and is not special to GCA..

I strongly recommend the Iowa paper mentioned on my web site:
http://frontal-lobe.info/gca/gca.html and new: frontal-lobe.info/gca/gca2.html