Badges (1)

About

Member has chosen to not make this information public.

Pages

Member not yet following any Pages.

Posts (13)

Tue, Jul 30 9:21pm · MAC nodules in MAC & Bronchiectasis

I think many pulmonologist are clueless when it comes to BX. I had to demand sputum cultures and then when Dx with Mac and several bacteria’s, he tells me the cure is worse than the Desease. Finally, when a cat scan identified BX ordered from a cardiologist, he passes me to an ID. I now have my first white sputum in 3 yrs

Mon, Jul 15 6:27pm · Starting Arikayce - nervous in MAC & Bronchiectasis

Hi Terri, I worked in the school system for 25 years. I also traveled extensively in Europe and in every State. I became intensely sick in 3 3rd world countries. Also had H-pylori. at age 62 ws DX COPD. Hdn't smoked in 40 Yrs. I came down with my first pneumonia after sight seeing in Washington DC.

Mon, Jul 15 2:31pm · Disinfecting nebulizer in MAC & Bronchiectasis

I was told to put in dishwasher on top shelf

Mon, Jul 15 2:29pm · Disinfecting nebulizer in MAC & Bronchiectasis

Where online

Sun, Jul 14 2:59pm · Disinfecting nebulizer in MAC & Bronchiectasis

Do you get your neb supplies from insurance or buy your own. Every time I order supplies they send a mask along with the standard container and charge for it.

Sun, Jul 14 2:49pm · Starting Arikayce - nervous in MAC & Bronchiectasis

what is the reason we keep getting it

Mon, Jul 8 7:29pm · Good MAC Doctor Recommendations in MAC & Bronchiectasis

Thank you for info. I live in Orlando. How about you

Sat, Jul 6 8:42pm · 'PINK SLIME' Data Base in MAC & Bronchiectasis

Me too, I worked as an SLP on the school system for 25 yrs