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Posts (2)

Jan 5, 2012 · walk 23 steps and get totally out of breath and heartrate goes up in Digestive Health

I have the same problem of getting sob and my heart rate going up. I see three drs and I am going to ask them to consult each other. My pft for TLC is ok, my diffusion is less, my ck for polymyositis is ok, so why? I wonder if it’ s the tapering of the predisone. My cardio has me on cardizen but heart rate is still high. I go to the pharmacy each day to get a reading. Bp is ok. I am 55 and have polymyositis with interstitial lung disease. My echo was ok for pulmonary hypertension – looking forward to my dr visit next week so THEY can fiqure it out!!!! Good luck to you – it is very tiring. -:)

Aug 10, 2011 · Interstitial lung disease in Lung Health

I have ILD with polymyostitis – I had organizing pneumonia first and then went to ILD – had a lung biopsy. Am on Predizone (weaning from 10mg) and 3000 cellcept. I went to John Hopkins in March, have you gone to Mayo? Thanks