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Thanks so much for the link! I'll bring the subject up again with my pulmonary specialist and see if he'll agree to the switch.
Thanks very much for the recommendations. Actually my Infectious Disease doctor had suggested a change to 7% saline in my nebulizer (from 3%), but my Pulmonary doctor at Mayo wanted to keep it at 3%, saying that he typically only prescribed 7% for Cystic Fibrosis patients.
Sat, Aug 1 3:39pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis
I'm getting pretty discouraged, and my coughing episodes have frequently been very painful. I'm due to see my Infectious Disease doctor at Mayo again in mid-September, but so far there doesn't seem to be a lot of experience with an Achromobacter infection as best I can tell. Personal opinion: it's making my Bronchiectasis worse.
I’ve heard and read conflicting views and recommendations regarding the best diet for those of us with Bronchiectasis, esp. regarding dairy products and whether they contribute to mucus production. What have you found out regarding diet and foods that trigger problems?
Mon, Jul 20 8:13am · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis
The only symptom is persistent congestion, along with a lot of dark green/dark brown sputum, very sticky, despite three daily sessions with a nebulizer and SmartVest. I occasionally get some shortness of breath and chest pain, but I think the chest pain is just due to periodic coughing fits, because the mucus sometimes tends to get stuck in my air pipe and causes me to cough pretty violently until I can clear it out …not to get too gross in my description!
Mon, Jul 20 6:51am · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis
In addition to my bronchiectasis, I've got the same infection — Achromobacter — and I've had it for over a year now. My infectious disease doctor at Mayo told me at one point that I may never get totally rid of it …very hard to kill. She has me n a rotation of different antibiotics, a different one each month for the first 10 days of the month.