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Posts (7)

Fri, Jul 17 11:13am · Hair dye after Transplant in Transplants

I was not planning to step out for haircut or color in midst of this Covid crisis 🙂 I was planning to apply just the box color myself at home. My home nurse and Transplant coordinator responded to wait at least 3 months as the colors do have a lot of abrasive chemicals.

I was inquisitive as how long did you all wait if you do color your hair?

Yes, I have been feeling good last 2 week ( except for the anemia concern I am almost 8 weeks post transplant now.

Fri, Jul 17 10:01am · Low blood count after Kidney Transplant in Transplants

Hi Rosemary!

After blood transfusion on 7/10, the Hb count this week was a bit better at 9.3 Tomorrow I have appointment with Transplant Neph and would discuss more. If the level falls next week again, would ask the Neph on the next step.
WBC count is improving after stopping Azathioprine. Platelets count are improving slowly.
Renal and Electrolyte numbers are stable.

Thu, Jul 16 6:58pm · Hair dye after Transplant in Transplants

What is the reasonable time to wait before dying gray hair after a Transplant ? I have been told to wait since the immune suppression is high immediately after the surgery.

Sat, Jul 11 6:13pm · Low blood count after Kidney Transplant in Transplants

Also Azathioprine is stopped for me since WBC counts fell along with platelets. I am told to resume once they get to a specific count. These drugs have so many side effects.

Sat, Jul 11 6:10pm · Low blood count after Kidney Transplant in Transplants

Yes I am in close contact with mu transplant Coordinator and the Transplant Nephrology and Surgeon team are also watching my numbers and labs.
Labs are drawn once a week.

I did ask the coordinator is why is this happening now and she said not to panic as it does happen with critical surgeries. Then later she said the Nephrology may refer me to Hematologist. This actually caused me to panic. Hence reaching to this group to see if others who had Transplants and are on immuno drugs also experience such anemia post transplant. I do not want to be transfused every now and then and need to know what drugs can help.

Sat, Jul 11 4:35pm · Low blood count after Kidney Transplant in Transplants

@colleenyoung thanks for responding
The anemia was explained as side effect of CKD that I was suffering during pre transplant. It was usually managed via iron infusions initially and later through Aranesp shots once a month. Due the poor kidney condition ( GFR below 10) kidneys failed to produce a hormone called erythropoietin (EPO). EPO prompts the bone marrow to make red blood cells.

Post Transplant ( 4th day) the 1st episode of internal bleeding was found via CT scan. I was operated to wash the blood out and look for any injured blood vessel. Two days after there was yet another bleeding episode found via second scan and excruciating pain I was experiencing. I was operated again to wash out blood. All these repeated surgeries made me lose blood which was compensated via blood transfusions.
I was under observation in the hospital after the second washout surgery for a week so the kidney function improved and blood count stabilized. Even though the kidney function was normalized , the HB count was unstable. It would stay at 10 or 9 a day after transfusion but drop to 7 later. There were follow up CT scan done with no evidence of Hematoma developing as before.
So I was released home after 2 units of blood transfusions the day I came home. All was well 4 -5 weeks with hemoglobin rising to 12 and then gradually dropping by week.
This week it dropped to 7.3 so was Transfused again yesterday. Its been 7weeks post Transplant so I doubt I am bleeding internally. There was a repeat CT 10 days ago which was mostly normal.

I am wondering if this drop in Hb level is normal post transplant due to the immuno drugs we are on. I have already seen drop in Platelet count due to Tacro.

I am following up with my Transplant coordinator
to see if all this is normal

Sat, Jul 11 10:47am · Low blood count after Kidney Transplant in Transplants

I had my kidney Transplant on May 22nd 2020 so am only 7 weeks after the procedure. I had some post transplant surgery bleeding complications so had to be opened two times to wash the blood. My Transplant stay in hospital was for 14 days. I had always being anemic ( Hb between 9 and 8) during my pre- transplant years. But since transplant my Hemoglobin had been dropping to 7. I have been transfused with 12 units of blood during my hospital stay. The Blood loss was explained as side effect of internal bleeding episodes. But now that I am home and recovering my Hemoglobin is dropping again. Recently it dropped to 7.3 so I had to go for one more unit of blood transfusion again. I am not sure if the immuno suppressants are causing this drop. I am on 6mg Tacro , 5 mg Prednisone and Azathioprine( held at the moment due to drop in Wbc)
Anyone experienced severe anemia after Transplant?