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Aug 27, 2011 · Is there a connection between gastroparesis and fibromyalgia? in Digestive Health

Thanks for your reply. It is so nice to know that I am not alone with this.Unfortunately my insurance so far won’t cover the Domperidone, and maybe for once it is a good thing from your description. I have tried all other medications available for the gp and most for the fibro. Right now I am trying Cymbalta for the fibro and so far it hasn’t made the gp any worse, and the fibro is getting somewhat better. I also have looked into accupuncture but unfortunately insurance won’t cover and I don’t have the money to pay out of pocket. I have heard good things about the Botox if you have the money to do it, since it is still considered experimental for fibro my insurance won’t cover that either. I have been told that I may be a candidate for a gastric pacemaker, have you heard any pros or cons about this? My only other option as you mentioned is a feding tube, which I really don’t want to do.

Aug 2, 2011 · Gastroparesis with severe symptoms! in Digestive Health

I have had the same exact symptoms, as well as ringing in my ears for about 3 years now and I am also NOT diabetic. First they said it was my gallbladder because I had alot of vomitting, and had gallstones that showed up on a CT scan, so they removed my gallbladder. After about 3 months I continued to have the same symptoms so then they said it was severe reflux or (GERD) and put me on medication. The “reflux” especially chest pain contined and I had a Nissen Fundoplication this past March to correct this. If they suggest this surgery DO NOT do it. It has only made the nausea, fullness, and gas/bloating 100 times worse and now I can’t belch or pass gas as effectively as before the procedure and I can no longer vomit due to the creation of a one-way valve into my stomach. About a half-hour or so after a regular meal, even very, very small portions, I have chest pain, stomach pain (from the gas), and I am bloated to the point where I feel (and look) like I am about 6-8 months pregnant. I can lose or gain up to 15 pounds in the same week depending on if I eat solid food or not, and if my stomach decides to empty or not. Eventually when my stomach does decide to empty I have unpredictably severe diarrhea with a lot of lower abdominal pain until everything passes. Unfortunately I am managing the exact same way you are. Most days I just have Gatorade or flavored water like Propel, but eventually I get hungry, eat solid foods, and suffer. This cycle never ends, it just continues on and on.

I have been told that the only thing left to do would be a gasgtric pacemaker, which my insurance won’t cover until the “official” gastroparesis diagnosis has been confirmed for 1 year, and all other methods have failed, i.e. medications like Reglan,Domperidone, and anti-reflux surgery. This won’t be until November for me and if I do decide to have the pacemaker, I have to travel about 2-1/2 hours away from my home and family to have it done. Since there are no guarantees with this procedure either I’m still not certain what to do. It is a real challenge living this way. I haven’t been able to return to work since last November and have no disability payments coming in, so my family is struggling as well. I guess all we can do is support each other, pray, and hang in there hoping for a better tomorrow.
Good luck to you!

Aug 1, 2011 · Is there a connection between gastroparesis and fibromyalgia? in Digestive Health

I was diagnosed with fibromyalgia in 2006. After having 3 abdominal surgeries within a 2 year period I was diagnosed in November of 2010 wih gastroparesis. I also had a GI bleed in October of 2010 due to chronic use of antiinflamatories. I have tried and failed all of the medication treatments and diet modifications that my doctor has suggested, so now he seems to be blaming my fibromyalgia for the gastroparesis issues. Anything that my pain specialist prescribes to help my fibromyalgia, my GI specialist disagrees with. I have had an unending flare up of my fibromyalgia symptoms since being diagnosed with gastroparesis and having a Nissen Fundoplication surgery in March of this year it got even worse. Some days I cannot even get out of bed. Does anyone else out there with gastroparesis also have fibromyalgia? Is it possible to live well again with both of these conditions simultaneously?

Aug 1, 2011 · Gastroparesis with severe symptoms! in Digestive Health

I had the same nuclear egg study done back in November to diagnose this. As far as I know this test is the only true way to confirm gastroparesis, although I know of some people who had that test come back normal and actually do have gastroparesis.