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Wed, Apr 8 9:29am · Pancreatic Cancer Group: Introduce yourself and connect with others in Pancreatic Cancer

Hello-we will be meeting with Dr. Mahipal in person tomorrow. My wife and I are very glad to get the process moving. I have several questions prepared-mostly about the plan, chemo timing & frequency, what to expect, etc. We live in the Twin Cities so I could potentially have chemo treatment at Mayo-that is currently the plan. I believe I will most likely have Fofirinox or a combination of Gemcitabine/Abraxane. When I had hodgkins chemo, I had a groshong catheter placed which made chemo intake less painful. May not be necessary for this chemo treatment. So, I have questions like that. I will also be asking about other treatment option down the road, i.e. radiation, whipple procedure, immunotherapy considerations, clinical trial options, etc. Lots to talk about but we are very glad to be getting started. If there is anything that jumps out to folks we should ask I would certainly welcome the advice. Joe

Tue, Apr 7 9:52am · Pancreatic Cancer Group: Introduce yourself and connect with others in Pancreatic Cancer

Hello Rita-thank you for your reply. I just read your story and it certainly is inspiring. I'm so glad to read how well you are doing. I see you live in Lino Lakes. We live in the Plymouth/Maple Grove area. Anyway, thanks for sharing and may God continue to protect you. Joe

Tue, Apr 7 9:46am · Pancreatic Cancer Group: Introduce yourself and connect with others in Pancreatic Cancer

Hi-we just learned we have a consult this Thursday at Mayo Rochester with Dr. Amit Mahipal and should learn much more then about the plan. We are ready to get started for sure. Thank you for this site, I've already found it to be helpful.

Tue, Apr 7 9:44am · Pancreatic Cancer Group: Introduce yourself and connect with others in Pancreatic Cancer

Thank you-we are ready to get started. I hope all goes well with your friend's Whipple procedure. Blessings to you.

Mon, Apr 6 4:18pm · Pancreatic Cancer Group: Introduce yourself and connect with others in Pancreatic Cancer

Hello, I just joined this forum. I was diagnosed with Pancreatic Cancer by Mayo on Mar 31st last week following Endoscopic US, then had CT this past Friday. Report shows there are metastatic lesions on my liver, spleen, duodenum and pancreatic head. We believe we will be told it is stage 4 since it has metastasized to the liver. I am no stranger to cancer, had Hodgkin's stage 3b with chemo and radiation in 1993 while in college. The treatment cured me and I have been able to live a blessed and wonderful life. Unfortunately, the radiation that saved my life due to Hodgkin's created new challenges down the road. In 2016, due to tissue deterioration caused by the radiation, I had my Mitral and Aortic valves replaced at Mayo Clinic Rochester. During that time Mayo also discovered a mass on my left Adrenal gland called a Pheochromocytoma. Apparently very rare condition and can be very dangerous. Had the Pheo removed in Jan 2016, then the valve replacement surgery in March 2016. I've been doing great following those surgeries until now with the Pancreatic Cancer diagnosis. I'm 48 years old and my family and I are ready to fight this with everything we have. I am so thankful for Mayo and have seen 1st hand what they can do. We're anxious to learn our treatment path. I've done some initial reading and we are hopeful I can become a surgical candidate eventually with Dr. Truty or one of the other surgeons at Mayo for the Whipple procedure. I will try to revisit once we learn more about our treatment path. God Bless you all, Joe