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Jan 12, 2015 · Arachnoid Cyst in Spine Health

Hi there, I have not had follow up in a couple of years on mine. I got a couple of opinions from neurosurgeons and no one seemed to think it was a big deal.

My symptoms seem to have declined and now I struggle with very low blood pressure. I have no idea why and the dr doesn\’t either. But no one has mentioned the cyst since.

I gave up trying to convince ppl that my cyst was giving me symptoms when every neurologist I saw told me these kinds of cysts don\’t cause symptoms. No one ever offered surgery to me.

Kelly

May 11, 2012 · Arachnoid Cyst in Spine Health

Hi jeep. Yes your symptoms sound similar to mine. Your cyst is much larger than mine though and i am surprised your NS is not suggesting treatment.

I realize that you posted here back in August, however I don’t think I replied to you. I apologize for that.

Anything new?

May 11, 2012 · Arachnoid Cyst in Spine Health

Hi Andyo. My symptoms have changed a little bit, but the significant symptoms (fatigue, headaches) have remained the same. Why don’t you inbox me and bring me up to speed on what your wife is going through and we can compare notes.

Thx 🙂
Kelly

May 11, 2012 · Hi Kelly, to be clear it is my wife who is suffering in Just Want to Talk

I completely understand how a chronic illness affects the family unit

Jul 22, 2011 · Arachnoid Cyst in Spine Health

Hi there, I am living in Ontario, Canada (although my profile lists an american state. There was no option for me to select a canadian province) and I am a 39 yr old woman. I have been diagnosed with an arachnoid cyst of the right posterior fossa which measures 2.1×1.6×1.6 cm.

The diagnosis came from an MRI after I started experiencing tingling and numbing sensations in my hands and feet. Well, later to follow was extreme fatigue, extreme burning pain in the base of my head and neck, behind my left ear, dizziness, light headedness, feeling like air is trapped inside my head, ears popping and buzzing, mood swings and i have had two episodes where I have almost fainted holding my baby.

I have seen one neurologist here in Ontario who tried to tell me i was pre-menopausal or depressed, neither of which is true. It seems like the medical profession here in canada do not recognize these tyes of cysts as being symptomatic, yet i have found thousands of people all over the world with the same cysts causing the same symptoms. It is so frustrating being told that my symptoms are “not likely” caused by this cyst, yet there has been no other medical reason found. The symptoms have progressivly gotten worse since I had my son, who is 20 mths old now. I am no longer working becuase the headaches and fatigue have become dibilitating. I want my life back!! I sleep endlessly during the day and night and feel as though my body just doesn’t have enough energy to work for me. I am losing out on precious moments with my children and no one will help me.

If anyone out there has experienced teh same thing or help me in any way please contact me. i desperately need help.

I understand from my enormous research that I have done that these cysts are often triggered to be symptomatic after a c-section child birth (which is when this all happened for me) because of the epidural or spinal that has tapped into my spine because the cyst is near the top of my spinal cord and cerebellum. I also understand that neurosurgeons in other parts of the world are doing great things with these cysts.

thanks in advance to anyone that can help me.