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Posts (13)

Fri, Apr 24 1:06pm · Mysterious shortness of breath in Lung Health

Hi @scrappy2020 – Welcome to Mayo Clinic Connect! It can be frustrating and terrifying not being able to see a doctor because of COVID, but you have come to the right place to talk with people who have similar experiences. I encourage you to read the posts here about shortness of breath, and see what others have done to improve it.

How long have you been experiencing shortness of breath, and how often does that happen, if you don’t mind sharing?

Hi @xzigalia and welcome to Mayo Clinic Connect! I am so glad to hear that you’ve identified the culprit and are feeling much better. Like @robkern3, I am curious about the kind of stretches you did – it is amazing that you’re able to find relief through stretching!

Do you have any lingering shortness of breath, or has that all been cleared?

Tue, Apr 21 1:07pm · Gratitude for this MAC group: Finding Gratitude Daily in MAC & Bronchiectasis

@thumperguy I completely concur. The information, experience and knowledge shared in this group is beyond measuring. You'll notice that I modified the title of this discussion slightly to Gratitude for this MAC group: Finding Gratitude Daily. If you agree with the title change, I think this will invite all members to share what they are grateful for.

@tinaesims @heathert @irene5 will you help kick it off? If you'd like, please post a message by tagging at least one or two other members and complete this sentence: Today I am grateful for _______________________________.

Tue, Apr 21 1:05pm · Can you have pneumonia with 98% oxygen saturation? in Lung Health

Hi @mkqq, I am so glad to hear that you are doing better! Thank you for sharing the good news with us – it must be such a relief to know that your viral infection is gone.

If you are still having trouble sleeping, you may be interested in joining this discussion group:
– Sleeping Well During Anxious Times – https://connect.mayoclinic.org/discussion/sleeping-well-during-anxious-times/

Mon, Apr 20 1:26pm · Will CBD be Detrimental to My MAC Treatment? in MAC & Bronchiectasis

Hi @bmiller57, I just wanted to let you know that I changed the title of this discussion so that it reflects the discussion topic a bit more. It will help other members to see the discussion at a glance, and join in here. The new title is – " Will CBD be Detrimental to My MAC Treatment?”

You may also be interested in joining the members talking about ankylosing spondylitis in this discussion in the Ankylosing Spondylitis discussion group:
– Ankylosing Spondylitis – https://connect.mayoclinic.org/discussion/ankylosing-spondylitis/

@boomerexpert might be able to share her experience with both MAC and taking CBD for rheumatoid arthritis.

Bmiller57, have you mentioned your use of CBD for ankylosing sponkylitis to your pulmonologist? What form of CBD do you use, smoking or edibles?

Fri, Apr 17 4:05pm · Can you have pneumonia with 98% oxygen saturation? in Lung Health

Hi @mkqq, I found an article that details a study on normal oxyhemoglobin saturation during sleep – https://www.ncbi.nlm.nih.gov/pubmed/8989066. They found that for healthy patients, the median saturation was 96.5% +/- 1.5%.

I hope that the study gives you some relief, and that you are continuing to feel better. Do you still feel like your body is having more energy as the days go by, and have you been breathing better for the past few days?

Thu, Apr 16 2:57pm · Mysterious shortness of breath in Lung Health

Hi @dishwalla9, it looks like the layout of the discussion may have led you to believe that @uzairkashtwari92 was speaking to you. He was in fact responding to @nick43 who was asking the group if his symptoms might be psychosomatic. Hence that word was used in the reply. It was not a judgement on you or anyone else for that matter.

It can be confusing sometimes to know who is replying to whom, since you get an email for every response made to the discussion. This does not mean that each response is specifically directed to you. This article explains:
– Replies and @mentions: How do I know who is replying to whom? https://connect.mayoclinic.org/page/about-connect/newsfeed-post/replies-and-mentions-how-do-i-know-who-is-replying-to-whom/

Dishwalla, I can understand your frustration at not being believed and doctors being wrong about your fibromyalgia diagnosis. So many share that unfortunate experience. Are you taking part in the fibro discussions in the Chronic Pain group? https://connect.mayoclinic.org/group/pain/

I also want to take a moment to welcome new member @dominodad (love the username and would like to hear the backstory on that). Dominodad, I encourage you to read through the posts if you haven't already. I know you share in the frustration of other members here in the lack of clear answers. What specialists have you seen?

Wed, Apr 15 9:10am · MAC Antibiotic Medication: What time schedule works best for you? in MAC & Bronchiectasis

Hi @bmiller57, you may notice that I moved your discussion and combined it with this existing discussion on MAC Antibiotic Medication. I did this to introduce you to other members talking about what time of day is best to take MAC medications. Click on VIEW & REPLY in your email notification to see the past posts as well as the first hand information @irene5 shared.

Irene and Bmiller, have you been taking these medication on an empty stomach, or do you usually take them with food?

Mon, Apr 13 5:53pm · Periodic Limb Movement Disorder in Sleep Health

Hello @misstroy and welcome to Mayo Clinic Connect! It must not be easy dealing with both PLM and restless leg syndrom (RLS) for 30 or so years! But you have come to the right place to talk with people who have similar experiences. I’d like to invite @johnbishop @barbarn and @johnhans to this conversation – they may be able to offer support and shed light on both of these conditions.