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Posts (7)

Sat, May 23 11:55am · Two bits of good news!! (and nebulizing with saline) in MAC & Bronchiectasis

Didn’t know you could do that. Thanks!

Sat, May 23 9:52am · Two bits of good news!! (and nebulizing with saline) in MAC & Bronchiectasis

I, too, was diagnosed with MAC/Bronchiectasis in mid-March. I started on the 3 antibiotics immediately. I left a message with my pulmonologist several weeks ago (after reading the posts on this site about thumper vests and saline nebulizers etc) asking if there were any other therapies that he would recommend for clearing my lungs and his nurse called back and said “no, only the antibiotics.” So I guess I am wondering why you guys on this site are receiving this treatment but I am not. Is it recommended only in cases of severe vs mild Bronchiectasis?

Sun, May 10 5:54pm · Could Mac treatment cause food to taste bad? in MAC & Bronchiectasis

Thanks Irene for the suggestions. I am not on Clarithromycin but am on azithromycin, rifampin, and ethambutol—maybe one of those are the culprit causing this appetite issue. There are barely enough hours in the day to fit all these medicines in, but I’m trying! Thanks again for your reply.

Sun, May 10 5:50pm · Could Mac treatment cause food to taste bad? in MAC & Bronchiectasis

I have been having issues with tomato based foods, citrus, and peppered foods as well. Thank goodness for yogurt, eggs and watermelon. Appreciate the advice.

Sun, May 10 5:47pm · Could Mac treatment cause food to taste bad? in MAC & Bronchiectasis

I made tomato based chicken tortilla soup last night and seriously could not believe how horrible it tasted! My husband and daughter assured me it was delicious!?!?! That and the burning tongue is what prompted me to write this morning! Thanks for the info!

Sun, May 10 7:56am · Could Mac treatment cause food to taste bad? in MAC & Bronchiectasis

I have been on antibiotics for MAC for 6 weeks-the big 3 on MWF. I have 0 appetite and food doesn’t taste good. Sometimes my tongue burns and mouth feels dry. Is this common?