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Nov 14, 2011 · Conversion disorder with pseudoseizures (PNES) in Epilepsy & Seizures

I have conversion disorder with psedoseizures. I have the jerking from the seizures on a daily basis. I passed out once with my first one in ’09. The jerking I’ve had since Sept. ’10. Now I have speech slur almost daily and I started yelling out when my body tries to rest. I’ve had a lot of trauma and stress in my life and my Neurologist [after much testing] said as a result I’ve been diagnosed with conversion disorder and the pseudoseizures are a symptom. I’m 59 and no longer drive. I’ve applied for disability, denied, and have appealed. I stay positive and thank the Lord for what I am able to do. @outback101

Aug 27, 2011 · Conversion disorder with pseudoseizures (PNES) in Epilepsy & Seizures

Well I hope I can be of help. In 2009 I had a my first ever seizure where I went into convulsions and the whole bit. It was a good thing my husband was driving cause we’re from Illinois and was almost to Georgia. I blacked out and ended up in a Tennessee hosptial overnight. Since that experience more things have developed. Since Sept. of last year my body started involuntary jerking and to this day has never completely stopped…some days worse than others. Since Jan. of this year I started having speech problems…slurring…thought I had a stroke. Like the jerking I continue to slur…more on than off. I got severe headaches after my episode in 2009 and continue to have them off and on…I think they are associated with the seizures…which are non epileptic. I’ve had two EEG’S and four MRI’S and a couple of scans…and they can’t find any medical reason for my physical symptoms. As a result they have diagnosed me with conversion disorder with pseudoseizures. By the way…it’s NOT in our heads…we have no control over how our body reacts. You see, I’ve been thru alot my whole life and as a result of this I’m told my body acts in such ways because of the stress, trauma, etc. I’ve always been strong throughout my whole life but I can’t handle stress and anxiety as I once did. I worked for Kroger for 35 years and haven’t been able to return. I applied for disability and was denied…but recently appealed and so it’s a working progress. I no longer drive…it’s just not safe…and because of my seizures. I sometimes feel “disconnected” as well. I’ll be 59 and my husband is 52 and working…thank goodness. I spend a whole lot of time at home…that’s just the way it is. I have a strong faith and that’s what keeps me going. I’ve always been happy go lucky and upbeat…this disorder has made a difference. I used to LOVE being around people…but it’s just not like it used to be. I’m more sensitive to noise at times and I started YELLING OUT couple of months ago…so I’m going back to Washington University next week to see my neurologist. I hope I’ve given you some answers and I’ll be glad to communicate more. I understand this is kinda rare of a disorder and it really hard to find someone who specializes in it as well. I take Lexapro, Amitryptline for anxiety and depression and Lunesta so I can sleep at night. God bless…Diane @guesslu

Jul 28, 2011 · Borderline personality disorder and bipolar disorder in Mental Health

Just to say I pray things are better for you and family. I understand how tough things can get…it’s not easy.

Jul 28, 2011 · Borderline personality disorder and bipolar disorder in Mental Health

Therapy helps. When my daughter got her diagnosis of borderline personality and bipolar little did I realize as her Mother how traumatic it is for her loved ones as well. It was a struggle for her…and for me. Now after being diagnosed with conversion disorder I realized that I have a disorder as well…and now we have to be there for each other. Life isn’t always easy…as I well know. There was abuse in both of our lives…and divorce. And…I’ve had a lot of trauma in mine. But…as long as you keep your faith in the Lord…he has a plan…you can survive. God bless all!!!

Jul 24, 2011 · Tired behind the Wheel in Sleep Health

You probably should have a sleep study done. I now use a CPAP machine and can’t sleep without it!! If you do have apnea and aren’t getting enough oxygen it can lead to other medical problems. Better to be safe…good luck and God bless.

Jul 21, 2011 · depression related to son's problems with alcohol, lying, stealing in Depression & Anxiety

My daughter has bipolar/borderline personality. She’s doing much better now and has moved out of state. It’s a lot to deal with…how well I know. I finally had to quit feeling sorry for her and instead let her fall because of bad choices. It’s been 7 years in the making. I started having Pseudo Seizures almost 2 years ago…and now I concentrate on me…as I know my daughter has to do the same. Be happy to discuss more…you’re in my prayers.

Jul 21, 2011 · Conversion disorder — any others? in Mental Health

I too have been diagnosed with conversion disorder. Do you have Pseudo Seizures?

Jul 20, 2011 · Help!!! 25+yrs and still no one solved!!! in Heart & Blood Health

1sugarpop…what got my attention was the myoclonus…do you have uncontrollable body jerking?