Member has chosen to not make this information public.

Groups (1)


Member not yet following any Pages.

Posts (5)

Sat, Mar 7 5:50am · CRPS - anyone suffering with complex regional pain syndrome in Chronic Pain

I have CRPS of my left arm. Occurred after a fall, then rotator cuff surgery.. I was taking Gabapentin and currently switching over to Lyrica. My fall was over two years ago, so this has been going on a long time. Everyone is different, so treatment is so individualized. What level of pain do you have? Once I got up to 3600mg a day of Gabapentin, my pain level went from a 7 to a 6. I started PT again with the lower pain level, and it went back to a 7. I have had many side effects from Gabapentin, so hoping Lyrica has less. You are the first person that I have conversed with that has CRPS in an arm. Most seem to have it in their legs/feet. My pain specialist suggested a Spinal Cord Stimulator for me. However after doing a lot of research on the success for CRPS of the arm, very little positive data could be found. I also am a breast cancer survivor and with the Spinal Cord Stimulator, you can’t have MRIs of your torso. I empathize with you and would like to see how your journey progresses. Best of luck and stay in touch if you like.

Tue, Feb 11 4:28pm · CRPS and Nevro SCS in Chronic Pain

Thank you so much!

Thu, Feb 6 5:19pm · CRPS and Nevro SCS in Chronic Pain

Yes, it is chronic. It’s been over two years. I am a patient at the pain clinic in Rochester. I am looking for information from people that have CRPS in their arm, and has a SCS. I would like their feedback.

Thu, Feb 6 5:11pm · CRPS and Nevro SCS in Chronic Pain

Thank you for replying! What kind of SCS do you have? Are you still on pain medications?

Thu, Feb 6 12:17pm · CRPS and Nevro SCS in Chronic Pain

I fell on the ice in 2018, after which I had Rotator Cuff surgery, developed CRPS and had surgery again for frozen shoulder. This last surgery was one year ago. My pain doctor has suggested a Nevro Spinal Cord Stimulator. I have not been able to find much information and articles about the success of of SCS for upper extremity with CRPS. I am also looking for the ability of increased function. Does anyone have any insight on this?