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Posts (15)

Thu, Apr 2 7:03am · Pancreatic Cancer Group: Introduce yourself and connect with others in Pancreatic Cancer

I am so very sorry. Welcome to the group. People here won’t have to imagine what you are going through. They know. Two years is not a very long time.

Mon, Mar 30 7:31pm · Are you getting cancer treatments during COVID-19? in COVID-19

I think your question is a very good one.

Thu, Mar 26 6:42pm · Are you getting cancer treatments during COVID-19? in COVID-19

I had my first monitoring scheduled for May and it was canceled. I also have a ventral hernia (from my pancreas and spleen surgical incision) that needs repair and that also got canceled. It’s huge and painful but I understand the priority.

Wed, Mar 18 4:45pm · Pancreatic Cancer Group: Introduce yourself and connect with others in Pancreatic Cancer

I’ve so appreciated your posts and wish you the very best possible outcomes.

Sat, Mar 7 7:59am · Mayo Rochester oncologist referral for pancreatic cancer in Pancreatic Cancer

I have my first monitoring scheduled for later this month. CT scan and blood tests (CA19-9). I feel good/hopeful about the oncologist I’ll be seeing. Thank you so much for the replies and support.

Wed, Mar 4 3:28pm · Mayo Rochester oncologist referral for pancreatic cancer in Pancreatic Cancer

Thank you. My situation seems to be unusual. The distal procedure was intended to be preventive so it was a surprise when tiny 1mm size Adenocarcinoma was found within the cyst. Since my cancer was removed so early (margins clear, low CA 19-9, lymph nodes clear) there was disagreement within oncology about whether or not I should have chemo. There is not enough research yet on patients in my situation to guide this decision so I was given a choice and opted for monitoring only. Very painful decision to have to make. I may have recurrence a few years out but I have my physical health (no diabetes, no neuropathy) now. By choosing monitoring only I am gambling that the surgery occurred before microcells were released, understanding I may face recurrence. I need to start monitoring at 6 months (April) and would like to work with an oncologist who is comfortable with my choice. My primary care doctor may be able to help with this. I will see her Friday.

Wed, Mar 4 1:56pm · Mayo Rochester oncologist referral for pancreatic cancer in Pancreatic Cancer

Thank you. If this was an inappropriate question I hope you are able to remove it.