I am not sure of one that is just two times a year, I know the solu- medrol is done a little as possible. I think they use to try to get it back to a more manageable level. If that makes any sense.
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Hello, when I was first diagnosed I had a CPK of over 13,000. I was given methotrexate and large doses of prednisone. I had a lot of heart involvement, plus trouble swallowing and all the trouble with muscles getting out of chairs , climbing stairs, raising my hands above my head….it continued to get worse, so the gave the solu-medrol infusion for 3 days and it finally calmed down, but I had a lot of heart damage. I was pretty maintained on the prednisone and methotrexate, but I eventually required a heart transplant, which I got 4 years ago. Now I am on alot of immunosuppression and haven’t had any problems with the polymyositis. Sorry kind of a long story. It is such a mysterious disease and very frightening. There are not too many people have ever heard of it.