My name is Laurie and I was diagnosed almost 2 years ago with SMZL after routine bloodwork for an ortho procedure. I wasn’t officially diagnosed until after a bone marrow biopsy. I am extremely lucky to have been diagnosed early, and quarterly bloodwork find me remaining pretty stable. I am 64 years old and fairly active.
Has anyone seen or heard about healthy lifestyle models for SMZL patients? There isn’t a lot of research because we’re so rare, but I’d like to be as proactive as possible and find resources on diet, exercise, and mindfulness as it pertains to the immune system. So happy to have found a current group!