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Posts (6)

Mon, Feb 10 11:00am · 7% Saline Solution in MAC & Bronchiectasis

Atrovent HFA….. Cynthia, my doctor has me on Albuterol for during the day hours and Atrovent HFA for night time because of just that. He said I wouldn't have the "jitters" with the Atrovent. You may want to ask your doctor about that? Hope this helps.

Mon, Jan 27 1:06pm · 7% Saline Solution in MAC & Bronchiectasis

Windwalker, isn't Flovent a steroid? My doctor has me on Ventolin as opposed to Flovent because of that reason. He said using any steroid is like throwing gasoline on a fire ( for the MAC ). I, also, am on the Big 3. I'm just curious. Additionally, I see y'all writing about saline solutions 7%….. can anyone tell me what that's all about? How do you use it and what is the purpose? Thank you all for your dedication to helping others ! Toni

Mon, Jan 20 11:14pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

By the way…. question, I assuming the answer is no. Does anyone still use a waterpik? I used to use one all the time and now I'm wondering if this is a no no. Thank you for any responses. I'd like to know ….. Toni

Mon, Jan 20 10:53pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Hi, Sue. Thank you for the welcome. I had read about pipes and the effect of copper. I'll try to find it and share the info. I have all copper in the house I'm in right now. I'm in the process of rehabbing my Chick's Beach house and it, too, is all copper. However, when I went to check progress last week, I saw the plumber did not use copper in the rehab job. He used some plastic pipe. Needless to say, that is not staying. I'm meeting the contractor tomorrow and will enlighten him ONE MORE TIME ! PS…. I will check my water heater temperature. Thank you for that !!
I'm curious. You mention your Texas yard that you share with chickens and wild birds. How in the world do you avoid the "dust"? I have two rescue parakeets and my daughter wants me to pass them onto another home. I was in the hospital this past weekend because I had a lung bleed which was somewhat substantial so I had to go to ER and they admitted me. The on call pulmonologist was in partnership with my usual pulmonologist and he too, was wonderful I asked him about my birds and he wasn't to happy to hear about them, but said he didn't want to end my love affair with them so the very least use a mask when I'm around the. What is your experience/knowledge? These are my two little friends and such good company.
Thank you for all your information! Regards. Toni

Mon, Jan 20 8:01pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

I'm new to this site and appreciate all the input from those contending with this disease! It's my understanding that the MAC exists in the showerhead itself. I was told to dismantle the showerhead once a week and soak it in vinegar. What I also read is that copper kills bacteria. Therefore, I replaced my shower hose and showerhead with copper. The hose is copper infused and the showerhead is solid copper. It's easy peasy to unscrew the head after every shower and drain it and let it air dry, also. I hope this helps! Tonni

Wed, Jan 15 3:26am · MAC Reboot - After 3 Years Post Meds in MAC & Bronchiectasis

Prayers and blessings to you! I'm sorry to hear your MAC is back, but you have such a positive attitude, you'll rid of it again… I will be watching for your posts and keeping track of your progress. I am new to this site. I was diagnosed in September 2017. I am currently on the "Big 3". A sputum culture is being done as we communicate and hopefully it will show improvement. Thank you all for being here, to share and comfort. Blessings to all !!