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Posts (59)

Tue, Jul 21 8:40am · I was recently diagnosed with Bronchiectasis. in MAC & Bronchiectasis

And hopefully you'll not ever have to again ! Best wishes !!

Tue, Jul 14 3:40pm · More Water Related Questions in MAC & Bronchiectasis

I use a copper shower head. I've read in several articles that copper helps to eradicate bacteria. Hence, one of the reasons hospitals use copper infused linens, which I do also. So, I felt it couldn't hurt. I also have copper plumbing throughout my house. I also disconnect my shower hose after a shower to release all the water from the spigot and hose. Let it dry out. Hope this helps. Toni

Sun, Jul 12 2:11pm · Tinnitus and hearing loss from azithromycin in MAC & Bronchiectasis

I spoke with my pulmy doctor about it and he said " Lots of people your age ( 72 ) have hearing losses. I told him about this site and that there are several people who are on the Big 3 that have developed tinnitus and he said don't be so quick to blae the medication…. lots of people your age having hearing issues. WELL,…. lol I guess he told me !!! I'm going to discuss it with my ID this week.


I take Mucinex every single day. It makes a big difference in thinning the phlegm . Also, I use cucurmin and/or tumeric to help inflammination. My grandmother ( who was in the medical field ) swore by it. Make sure it's combined with black pepper which "carries" the tumeric into your system,

Sun, Jul 12 1:26pm · Mailing sputum issues in MAC & Bronchiectasis

Are you speaking of sputum tests? I'm curious about the turn around time. The next day???

Sun, Jul 12 1:22pm · Vibra lung in MAC & Bronchiectasis

I would certainly give it a try. It is so adjustable. I use Smart Vest and it can be very, almost soothing, or very vigorous. The therapist should be able to adjust it to where you are comfortable. Good luck !!

Sun, Jul 12 1:13pm · Mac + lung cavity in MAC & Bronchiectasis

I'm curious. Why? Why vegan??

Fri, Jul 10 4:24pm · Two bits of good news!! (and nebulizing with saline) in MAC & Bronchiectasis

Hi, Sue !! Thank you so much for your response. I'm sorry I had missed it but was just reading through posts and came across it. Well, I didn't think it was the same after reading so much about nebulizing from the posts on this site. So, I'm not comfortable with his dismissiveness. His take was, tho, that the albuterol which is my bornchdilator is the same as what is nebulized…. and as I'm writing this, duh !!! of course it isn't !!!
As for the tinnitus, is the Clrithromycin as effective as the Azithromycin?? Some days it isn't bothersome, others it is. Like today !
I live in Virginia Beach, Virginia. I've thought about reaching out to University of North Carolina. I believe that is the university that has a good program for Bronch/MAC. So, do alot of you travel to National Jewish Health or a Mayo Clinic??
I have 6 more months to go on the Big 3. That will give me 2 years on these meds.
I really do appreciate all the advice and sharing from y'all on this site. It's helped give me a lot of comfort and realization that there's a lot more of this affliction out there than anyone would every know. It's amazing to me! Until one is diagnosed, who ever hears of this!
Thank you, Sue !!!