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Posts (4)

Mon, Mar 2 11:08am · Polymyalgia Rheumatica (PMR): Meet others & Share Your Story in Polymyalgia Rheumatica (PMR)

Hi Jill,
Welcome to the community, it helps with feeling "normal".
I too was cutting 5mg tablets in half in an effort to taper down, like you I found that 2.5 mg was too big of a jump. I just recently got 1 mg tablets (which I learned about from the community;) and am managing the taper much better. A daily log is very helpful.
Good luck.

Thu, Jan 23 10:27am · Polymyalgia Rheumatica (PMR): Meet others & Share Your Story in Polymyalgia Rheumatica (PMR)

Hello @ronhonn, Have you considered going outside of your network and getting blood work done at an independent lab? It must be extremely frustrating for you to be in pain and left without benefit of a medical advocate. Good luck.

Mon, Jan 13 5:49pm · Prednisone, PMR, and Colds in Polymyalgia Rheumatica (PMR)

John,
Thanks for the response and for the help in moving my post to the discussion group – I guess I need the assistance of a tech savvy 5 year old to navigate the platform – I've read and found the other participant's experience helpful, so thanks to all.
I'm supposed to have surgery next month to remove a loose screw/hardware problem from a previous cervical fusion and I want to be as strong as possible. The cold is better, so I'm hoping to keep the "fix" surgery open.

Sun, Jan 12 9:40pm · Prednisone, PMR, and Colds in Polymyalgia Rheumatica (PMR)

Hi,
I was recently diagnosed with PRM. After the initial blast of Prednisone, I’m “managing” on a daily dose of 10-12.5mg. I caught a little cold, it would barely have been impactful pre PRM. But, now I’m wiped out by it. Is this common with PRM and/or Prednisone? The cough is driving me crazy. I would never go to the doctor for a common cold before, is PRM a game changer with regarde to something as simple as treating a cold?