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Fri, Apr 3 7:46am · Are you getting cancer treatments during COVID-19? in COVID-19

Amen to that, Marvin. I’m glad we don’t have to know what things would occur with our technicians. I’m so glad to hear that your wife was able to attend virtually. Pray!!!

Fri, Apr 3 7:40am · Are you getting cancer treatments during COVID-19? in COVID-19

I live in a suburb of Austin, TX. I JUST came up with sciatica, right before we started virtual Dr. visits. My pain doctor told me it was from Piriformis Syndrome. She was wrong. I ended up in the ER , due to unrelenting pain. I had tried SO hard to stay away from there but felt I had no choice. They gave me 4 days of Prednisone, a steroid, and 4 days of Valium 5mg every 8 hrs. That seemed to ease the pain until I woke up the next morning ( I slept for 4 hours straight) and Cried for the few feet I had to walk to go to relieve myself. I, then, had to call EMS to come get me and take me back. I got an MRI that time which shows 2herniated discs causing the pain. I’m supposed to be able to see my pain Dr. virtually. I had to go to a separate lab to have my blood checked. It’s stable. I am blessed. My chemo is by mouth. My prayers go out to those who have more horrible disease wracking their bodies and who must go in for treatments. God bless us all. Here’s hoping I can get some more medication for the terrible pain I’m going tho, but it’s nothing compared to the dilemma others are facing. Godspeed every last one of you.

Sat, Feb 8 12:00pm · Side effects of Hydroxyurea, ET in Blood Cancers & Disorders

Hi Pearly, I’m Tammy, almost 61 year old diagnosed at about the same time as you. I have an out-if-control Calreticulin gene in my bone marrow. I will have to deal it for the rest of my life. It’s very rare and, just like you, my platelets would be nearly at 1 million. I’m a little confused by the number you mentioned. Sorry. My number is reported as 800 but then x 1000, or 10 to the third, or 10 cubed. Whichever way you report it, it’s equal to 800,000. We have gotten it way down to 523, or 523,000 with Hydrea. That’s a good number, but it also means that I don’t produce the other parts of my blood so well. It’s better than throwing a clot or bleeding out if I had an accident. Anyway, since it’s rare, we need to be here for one another because I highly doubt if we will find a physical local group. Prayers for you, your family, care team and your endeavors.
Tammy