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Mon, Mar 2 5:35pm · Just Diagnosed with Small Fiber Neuropathy in Neuropathy

I landed on my left. Ruptured my spleen and fractured ribs on left. I’m recovered but my autonomic issues( digestion, urinary, swallowing) fatigue, migraines, tmj, vision problems, numbness, and muscle loss all started after the wreck. Skin biopsy showed small fiber neuropathy. I guess one of the scans showed a pinched nerve on the left side. I had no physical therapy. I still ride but I was breaking a 4 year old that day. I don’t do that anymore. I guess my problems result from a combination of causes.

Mon, Mar 2 3:05pm · Just Diagnosed with Small Fiber Neuropathy in Neuropathy

Wow ! I stand corrected. The symptoms listed here do match and I have been told I have a pinched nerve along with the sfn. Thanks, John.

Mon, Mar 2 3:00pm · Just Diagnosed with Small Fiber Neuropathy in Neuropathy

Horse riding accident. Ruptured spleen, punctured lungs, and fractured ribs. I almost bled out. I was in icu for a week. Still, that couldn’t be causing the autonomic symptoms. The fatigue and hair loss are the absolute worst.

Mon, Mar 2 12:19pm · Just Diagnosed with Small Fiber Neuropathy in Neuropathy

Could you tell me how long you have been living with SFN poly peripheral?

Mon, Mar 2 11:20am · Just Diagnosed with Small Fiber Neuropathy in Neuropathy

Yes, I'm still taking the alpha lipoic acid and magnesium that helps with digestion and cramps. I put myself on these. The doctors don't know what caused mine. I suspect alcohol and eating disorders, but my neurologist says no. He says I "never drank enough to do that," and he never wants to hear me mention it again. I quit alcohol well over two years ago, but my symptoms grew much worse about three months later and kept progressing for another year. I did have a major trauma right before the symptoms really cranked up, but nothing on MRI's. So I can't treat a cause because there doesn't seem to be one. I may try the Acetyl L-Carnitine.

Mon, Mar 2 6:27am · Just Diagnosed with Small Fiber Neuropathy in Neuropathy

My insurance denied IVIG coverage. There's nothing else to try. I wish I could forget I have this and just live. I have become this condition. I'm seeing a Christian counselor. That helps. I know different medications work for people, and I'm not on any, so I don't want people to become discouraged.

Fri, Feb 21 6:16pm · Ideas for pain relief from Small Fiber Neuropathy (SFN) in Neuropathy

It’s bluebonnet brand. Alpha lipoic acid. 300 mg. I’ve heard people mention R-ala but forgive my ignorance: I don’t know what the R is for. (Wish it could grow hair). 😔

Fri, Feb 21 5:43pm · Ideas for pain relief from Small Fiber Neuropathy (SFN) in Neuropathy

I wanted to share with everybody that I’ve been taking alpha lipoic acid for a few weeks and I have almost no burning in my arms anymore.