I didnt have the plasma exchange before gettinh the ivig…
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I know the feeling….i was told my doctor" my nerves get on my nerves". I have tried almost everything over the 16 years i have had it. My best was when i was on ivig treatments but dr took me iff after 8 years😥. Hang in there..sometimes when i get all balled up..i change what i am doing..if you can take a short walk. It takes my mind off of my nerves.
Yes i am going to look into kranton. If you have the means definately go for the ivig treatments, they kept me going for years. I started with a treatment every 6 weeks and at the end was getting a treatment every week… Yes and i was 46 when all this crap started
Thanks fir welcoming me. I have had cidp for 16 years, my neuropathy is unexplained…have been thru all the tests they found no cause. I have since developes diabetes 2 and of course the pain has increases. I took IVIG treatments for almost 9 years, the dr decided i was at a stand still and took me off for fear of liver problems. I have since gone thru all tje pain drugs and am currently on tramadol twice a day as well as 3600 mg gabapentin daily
as well as dulexotein . i was taking 8 50mg tramadol a day and now the all knowing insurance has cut me down to 2 a day. I have all the numbness, tingling, fire, freezing, ants biting, knives stabing, rubber bands snapping , you name it i have it from my toes to just iver my knees and my fingers to my wrists. It is a slow death. I am seeing a new neurologist on thrusday to see if he can do anything for me. Cbd salve helps for a couple if days then it doesnt. I gave even tried oxycodine that was prescribed to be during a knee procedure dudnt help much. I have a bad knee and a bad hip, but am scared to desth on how the surgery will affect my body. You may think i am an old person, well i am only 62 so age was not a defining contributor…..any one have any ideas???