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Posts (5)

5 days ago · Thoracic aortic aneurysm in Aortic Aneurysms

I have had a crazy month which started with a CT scan where the radiologist indicated my aorta as “normal size”. My cardiologist argued with him based on previous tests since 2013 at 4.5 cm mid ascending (echo) and monitoring every six months with 2019 test at 4.7 cm (echo). So off for an MRI which showed 4.5 x 4.9 cm with no signs of dissection or tearing. This is the first time they have indicated an oval shape. I’m 58 next week and it’s been very slow growing for 7 years which helped me to not even be very concerned. But, I have never been as worried or confused as I am right now. I’m not getting much more info from my cardiologist other than “we need to talk about next steps soon“ and then I have to wait a couple months to get in to see him. I need to talk to a surgeon or specialist that can give me better advise specific to my condition and to get a better understanding of my risk and timing for surgery. I wish I could be like you and not worry. But even though I knew I had it, this has suddenly taken over my every day life. I think it’s because I’m starving for good information and expert advise and I’m not getting it from my doctor. I have an appointment this month with a doctor at Mayo in Jacksonville. Maybe he will refer me to a surgeon in Rochester for an opinion. And, I’m thinking about a trip to Cleveland Clinic for a second opinion. I just would like to be more certain about whether I can put off the surgery a while with minimal risk, or I should just plan to get it done somewhere.

Wed, Jan 8 6:54pm · Thoracic aortic aneurysm in Aortic Aneurysms

Wow, that is great news! What a relief that must be to hear. Mine is at 4.7 and my doctor told me I need to start thinking about surgery. So, I’m very concerned about having to do something soon. I haven’t talked to a specialist/surgeon yet. I live in Florida but don’t want to be concerned with distance. Does anyone have a recommendation?

Dec 8, 2019 · Aortic Aneurysms – Introduce yourself & meet others in Aortic Aneurysms

Was Mayo in Rochester close to your home?

Dec 8, 2019 · Aortic Aneurysms – Introduce yourself & meet others in Aortic Aneurysms

Thanks for the quick reply. Its nice to talk with someone who has been through the same procedure. What Mayo facility did your surgery?

Dec 8, 2019 · Aortic Aneurysms – Introduce yourself & meet others in Aortic Aneurysms

I am 47 and have an ascending aortic aneurysm that has been at 4.5 for a few years now. At my last check up my doctor mentioned to start thinking about surgery. That put me into a whole different place with anxiety and concern. In addition to the procedure, I’m now worried about finding the right surgeon and if I would have a normal life assuming the surgery goes well.