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Nov 25, 2019 · Stage 3/4 Kidney disease: I need support before my appointment in Kidney & Bladder

Thank each and everyone so much for all of your suggestions and most of all you kindness and thoughtfulness. It has already helped. I’ve never known anyone with serious kidney disease and I am so grateful to read each of your comments. I am also extremely grateful to have gotten an appointment at Mayo. The earliest appointment was in Minnesota. I live in NYC but know this is the best thing I could be doing for myself. I look forward to staying involved with the group and hopefully at some point being able to give support and encouragement to others.

Nov 24, 2019 · Stage 3/4 Kidney disease: I need support before my appointment in Kidney & Bladder

I think one of my biggest questions surrounds what kind of quality of life I can look forward to. I have a sister who is willing to donate her kidney but she has a different blood type than me. I do know there are organizations where there are “kidney swaps”. I’ve done a great deal of reading but it almost regardless of it you do dialysis or transplant your quality of life is going to be quite poor.

Nov 24, 2019 · Stage 3/4 Kidney disease: I need support before my appointment in Kidney & Bladder

I got diagnosed with stage 3 to 4 kidney disease about 3 months ago. Although my GAF was around 30 all others measures were well within appropriate limits. I asked my nephrologist why this had happened as i’ve Always been healthy and all previous blood work over the years had been good. (I’m 71 years old). He said he had no idea why and at that moment I decided to try and get a second opinion at the Mayo Clinic. The appointment I was given was for 3 months in the future and is now 2 weeks away. I’m asking for some words of encouragement from anyone who has been down this road. I have no idea if i’ll Have a future and if so, no idea at all what it might look like. Now that my appointment is only 14 days away, my anxiety level is definitely on the rise. Thank you for anything you can do.