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Posts (39)

5 days ago · Just started big 3 for MAC: Questions about dosing and more in MAC & Bronchiectasis

Everyone has great suggestions. Welcome to this group. You will find a lot of support here. I learned about nebulizing 7% sodium chloride here and it has really helped. I take Rifampin first thing and I split up the other two. Ethambutol at noon with lunch and Azithromycin at dinner. Taking more than 3 pills at a time can really upset your stomach. But, everyone is different. Welcome and hang in there!

Mon, May 18 3:34pm · 3 Months in with 7% Sodium Chloride in MAC & Bronchiectasis

Hello, This is my second go around with MAC and the Big 3. I have been on the drugs for 3 months including nebulizing with 7% sodium chloride solution prescribed. I took sputum tests in November and did not het results until end of February. I grew MAC and mycobacterium nebraskense, which is a rare form. I did not do a CT scan this time since I have had so many in the past 4 years. I am hoping for a clear sputum. I certainly would not take the big 3 without a positive MAC result from my pulmonary specialist and infectious disease doctor. They are very, very hard on ones body. Hope this info helps!

Sat, May 16 9:56am · 3 Months in with 7% Sodium Chloride in MAC & Bronchiectasis

Thanks everyone. Will keep you posted and also, good luck to everyone!

Fri, May 15 10:36am · 3 Months in with 7% Sodium Chloride in MAC & Bronchiectasis

I just took another sputum test and the fast and first results are clear of any obvious rare form of Mycobacterium they found (immediately) last November. Now, the growing process starts and I am hopeful that the daily 7% neb will prove successful for beating back the MAC. I started the meds and neb 3 months ago. Fingers crossed I can be done with the big 3 this summer.

Sat, Apr 18 9:21am · Big 3 Daily? What’s your dosage? in MAC & Bronchiectasis

thanks for the info. I also neb 7% twice a day. I hope if I just bare with it I wi get rid of it sooner than 18 months. Best to all and stay safe.

Sat, Apr 18 6:48am · Big 3 Daily? What’s your dosage? in MAC & Bronchiectasis

Hi Everyone,
I have seen dosage posts about 3x a week, etc. I am on a high dosage daily. Ethambutol 1000mg, rifampin 600mg, azithromycin 250mg. Any comments, questions, concerns regarding this? If I Google the meds I get the typical scary Google stuff. Thank you and I hope everyone is staying home, safe and well.

Thu, Apr 16 6:35pm · Severe Body aches with the Big 3? in MAC & Bronchiectasis

Thank you Irene. The MAC gives me fibromyalgia type body aches even before the drugs but now it’s pretty bad. I will talk to my doctor about the amount of rifampin I am taking. Take good care and stay well!

Thu, Apr 16 2:49pm · Severe Body aches with the Big 3? in MAC & Bronchiectasis

This happened last time I was on the 3. Does this happen to anyone else?